First of all she is a beautiful little girl I can imagine how u r feeling, I guess I would start by asking her how does she feel with the wig on and off. She may not be as sensitive and can handle the wig being off, or ask her does she want it on today and have discussions on how she does not have to wear it if she does not want to but people are going to look and her maybe even laugh and say is that ok with you. I don't know if this may help, I try to tell my kids that no matter what u do in life or what u look like PEOPLE ARE ALWAYS GOING TO HAVE SOMETHING TO SAY I meet before an 8 year old girl that had alopecia and her mom said she refuses to wear the wig and she gave me such inspiration. I just bascially say talk to her she is only 4 but just keep talking to her being open...

awwwe, how sweet. please tell her she is a beautiful princess too, with or without hair because hair doesn't make us who we are inside =) and thanks so much for saying i'm an inspiration. i really try and little girls like your daughter help me even more when it comes to excepting this condition so thank YOU and HER! =D

Hi,
Welcome to AW. I also have a daughter who has AA. Currently the half top of her head is completely bald. Let me know if there is anything I can do or if you just want to chat please drop by my page.
Tracy

Hi, I can really understand what is going through your mind. Sam was bald by age 6. She started Kindergarten with bald patches that were always covered until oneday her loss was just too much that I bought her a wig. She loves/d wearing her wigs and wanted to wear one. I guess the HM craze really helped to want one at the time. I never let her go out bald, but that was mean for basically the same reasons you have. And I have the same fears and it is normal to have them and want to protect you child from what I call the mean people. Samantha has only let her close friends see her bald at home or their house and when we travel she rarely wore anything. I live in a small town and like to maintain some privacy. I try to tell her that she has visible allergy and that her medical situation is not really something she should have to explain. But, you really can't explain that to a 4 year old. Sam also had headbands with hair sewn into them that she liked to wear. I just saw your post on treatment options and will share this with you here. Sam did not respond to creams and you have to keep in mind that there is no cure for Alopeica and people respond differently to what is available to try. What works for one may not work or work the same for another. With that, I will tell you what we did. I took Sam to several doctors on a mission to find help. A year later she has almost all her back, but no lashes and brows. We see the doctor today. She is doing a treatment that is an irritant and it is called SADBE, squaric acid. Her body responds to the treatment in the form of a rash and an itchy scalp is a side effect. The idea is to confuse the immune system and wake up the hair follicles. Hair follicles can grow at anytime and never die, they are dormant. I can go into more detail about Sam's experience if you want to look into this treatment. Not all doctors do it. This face pic is her growth as of June, but I need to update as it is longer now. Check back in a couple days. But, the pics you see are various stages of growth. Did you contact CAP. I would really suggest trying to go to the conference in PA next week. It may be very helpful to both of you. Please write anytime. We are all here to support each other. Cindy

This is a pretty awesome website people are always willing to help out. I'm in lancaster a few times a week. Rosamond is only 11 miles form Ave I. I'm at my moms almost everyday to go swimming. I'm actually the Telephone support contact for NAAF in the Antelope Valley.

Welcome to AW I live in the AV too!! if you need anything please let me know. My mom lives in lancaster and I live in Rosamond.

Hi, welcome to alopeciaworld, what a beautiful little girl you have! For starters, give her a lot of reassurance and confidence in who she is as a person, let her know that she is truly truly not her HAIR! Stay blessed and in touch!

Hi there, first your daughter looks like a cutie. How is your daughter doing and have you taken her to the derm. I suggest contacting the Childrens Alopecia Project. They maybe able to connect you with a family in your area.
Cindy