Sooze
  • Female
  • Haywards Heath, West Sussex
  • United Kingdom
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A Big Day

Started Oct 6, 2008 0 Replies

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Profile Information

Relationship Status:
Single
About Me:
I am a happy healthy single Mum working full time. I have a gorgeous son, an amazing family & fabulous friends but I feel very alone when it comes to my alopecia which I have had for nearly 3 years now.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes

Comment Wall (13 comments)

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At 9:06pm on September 18, 2011, Ali said…
dont feel alone coz we all wiv ya
At 5:18pm on January 14, 2009, LeslieAnn Butler said…
Hi Susie, I just talked to my friend Tash in the UK and she says:
"Alopecia support groups in the UK that I personally use are: the Alopecia Areata Support Community and Alopecia Areta Foundation."
So you could probably research those. If you need more help, contact her, Tash Merchill at: merchill@hotmail.com.
Let me know how you make out!
LeslieAnn
At 2:34pm on November 28, 2008, LeslieAnn Butler said…
I understand how you feel about not having a partner. Sometimes it's really hard. But now that you have found a wig that you like and are feeling cute again, go get him!
At 1:45pm on November 28, 2008, LeslieAnn Butler said…
Hey girlfriend, you should email the publisher -- the printer has been holding back things for some reason (it's an error), and some shipments are getting delayed. Please email Valerie, at publisher@nightengalepress.com and let her know how long it's been since you've ordered.
Okay? xoxo
At 10:46pm on November 27, 2008, LeslieAnn Butler said…
Hey Sooze, how did you like the book? And how are you? Let me know if I can help some more...
At 3:58pm on October 13, 2008, jo chesson said…
hi, i think its hard not to feel slightly on your own, people try to understand but its hard, I hate that look when they dont know what to say!
At 4:54pm on October 7, 2008, LeslieAnn Butler said…
Sooze! I'm excited that you ordered my book! I can't wait to find out how you like it. Will you let me know?
By the way, you will be all right. Alopecia takes a big swipe at our self-esteem, but we can overcome that.
Big hugs, LeslieAnn
At 11:09pm on October 6, 2008, LeslieAnn Butler said…
Hi Sooze,
I know how hard it can be. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It might make you feel better. Check it out on my page -- and let me know how else I can help.
LeslieAnn
At 1:22pm on October 6, 2008, rj, Co-founder said…
Hi, Sooze. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder
At 1:17pm on October 6, 2008, Hugh said…
Hi Sooze,

A big hi to you! Welcome to Alopecia World!

Hugh

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