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Sybil Female Farmingdale, NY United States: Like

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Relationship Status: Married

About Me: Mom to Olivia who has AA. She started losing her hair when she was 2 1/2 in 2008. By her third birthday in 2009 she was bald.
She is a fabulous child who is very popular and loved by many. She doesn't let the loss of hair get her down and after meeting her, you don't even think about it.
I spend a lot of time in Facebook and you can find me under my maiden name...SCHAFFRATH

Do you have alopecia? (Choose appropriately): Parent or guardian of child with alopecia

Are you age 18 or older?: Yes - I am 18 or older

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At 9:24am on June 22, 2009, Misty Boggs said…: My 6 year old daughter Has a spot the size of a quarter in her hair. My spots are getter way bigger. This is a frustrating thing...Olivia is beautiful!

At 10:31am on June 15, 2009, Amit said…: Hello Sybil we still cant believe what is happing to our daughter! I have ordered some Herbal Preparation from Israel, Which I should today. It has to be applied on her head every day for 3 to 5 month so we will see. Give my love to Olivia.
Andy

At 12:57am on June 14, 2009, Amit said…: Hello Just saw all your pictures Olivia is precious !!!

At 6:17pm on May 22, 2009, Cindy said…: Hi Sybil, the mom I was telling you about gave me the name of the doctor, but she said she left disappointed the second time she saw him. He did not remember her daughter for the 2nd visit and left upset. If you want the name I will give it to you. let me know..

At 9:25pm on May 20, 2009, Angela Varnum said…: Hi Sybil..
First Happy Birthday to your beautiful little Olivia! If you ever need a pick-me-up just let me know and I will be there to listen, talk, laugh or cry. I know it is hard. Stay strong!
Angela

At 5:32pm on May 20, 2009, Cindy said…: Hi Sybil..How did your Mother's Day go? I emailed the mom to get the doctor info in Garden City but haven't heard back from her. Did she email you? Her name is Megan and daughter is Paige.

At 10:00pm on May 13, 2009, Angie, Gracie's mom said…: Happy birthday to Olivia on Monday! She shares Grace's name, but my son Jackson's bday is on 5/17--one year older though. Hope you all have a great day! Angie

At 9:58am on May 6, 2009, Christine Messner said…: I know how you feel..My son Kyler just turned 2 and he was diagnose with AA about 14-15 weeks ago and now he's about 70% hair loss. I wish people wouldn't stare..It REALLY bothers me,I feel over protective of him when we are out and about.

At 9:19pm on May 5, 2009, Karen said…: All parents are a bit lost when it comes this. Amber was diagnosed when she was three too. She is now five so we have been dealing with this for 2 years now. It does get easier but that saying that Amber has grown her back so in the mean time, we are just holding our breaths. I remember that I hated taking her to friend's houses or parties because it would mean that I had to explain to people what this is all about. I avoided it constantly but I knew that I had to expose her to this so that she will be able to cope with it herself especially when growing up.

After months of feeling sorry for myself and her...I ventured out and it was not that bad. We got her hair coverings and wigs and all that and allowed her to do whatever she wanted to do with her hair. Tough I know but it took baby steps for me. I think it is a process that we as parents have to all go through. But I always comfort myself by saying...that I rather take alopecia any day than any other children's illnesses that parents have to go through.

At 8:03pm on May 4, 2009, Maureen said…: Hi Sybil, I am here on long Island too. I live in Medford.
My son has AA , his started when he was 3 years old he is now 20 and it has made him a better person all the way around!!!! I know it is going to be hard but u just have to try your hardest to focus on what u can control. If u need anything just let me know, Always here to help, Very best to u all, Maureen

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