"If the trial goes well in the States it will be adopted everywhere because it works with diabetes."
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UK treatments
Started this discussion. Last reply by Satriani Jul 24, 2021. 8 Replies 0 Likes
Hi there, compared to other countries such as France, Ireland, Brazil, America etc, we seem completely limited in treatment choices. Doctors seem so reluctant to try anything new or ‘off label’. I…Continue
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"There are ways to get what you are looking for - even in the UK. You may need to get creative, but I would strongly urge you to try and make an appt. at the Yale center.
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"Hi Tony,
Thank you for your response. In the US you are lucky to access such pioneering treatments for your son. I hope the treatment takes well and he remains alopecia-free in the future. I hope he achieves great things. His mind is probably more…"
"I’ve looked at trialling and it seems like New Jersey? I should probably just emigrate to the States already, haha."
"I’ve dm’d you. Your kind words have really moved me. I wish the best for you and your son.
O"
"Stem Cell Educator Therapy is coming in the next couple of years if all goes well. I'm betting on this more than anything else. https://thronebio.com/home-alopecia-areata
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"My son is 12 years old has AU and is currently on Xeljanz. It has been 5 weeks now since treatment started (5 mg twice a day). It works. He is growing eyelashes, eyebrows, and hair - rapidly. Our son's doctor from Yale…"
"Hi O,
I feel for you . My son got au at 14 and still has it aged 22. we live in the north west of England and I completely agree that the medical profession in the uk do not attach any importance to research and treatment of Alopecia. I was…"
UK treatments
Hi there, compared to other countries such as France, Ireland, Brazil, America etc, we seem completely limited in treatment choices. Doctors seem so reluctant to try anything new or ‘off label’. I would even sign a waiver if they were that concerned about adverse reactions or being sued!My history is having AU twice. At 19 with full remission after a few months of minoxidil. I then had at 23. I initially had it treated with scalp clobetasol and minoxidil, but it kept falling out and didn’t…See More
"I’ve eaten in an intermittent fasting way since my late teens. I am glad that resolved issues for you, I ‘intermittently fast’ before it was ‘mainstream’, not to toot my own horn but only because I was a fat kid and got…"
Profile Information
- Relationship Status:
- Single
- About Me:
- On my second bout of alopecia, hope it is not for life.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
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