"Hi Serg. Your results sound very exciting! I've been UU for about 8 years. I have an opportunity to participate in a Phase 3 trial in my area. I have to decide in the next couple of days or I'll lose my spot - apparently it's in high…"
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CTP-543 trial--anyone start it yet?
Started this discussion. Last reply by Cheri A Sep 9, 2021. 31 Replies 0 Likes
I've been watching the trial for the drug by Concert Pharma called CTP-543. It hasn't started in my area but according to the governmt website they are started in a few places: …Continue
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"Once the semi local trial starts up for the open study they said they would call me to enroll. I lost 90% of my hair in a few months so im hoping this can grow it back"
"do you have any idea when CTP 543 will be available in the market ? "
"no. i haven't had any potassium elevations. are you fasted for your blood work? (i am not)"
"hello serge I also have a slight increase in potassium on xeljanz 4.5 instead of 4 but my doctor is not at all worried by conyre I have an increase in cholesterol. like you I have a bad hair response. is ctp 543 more effective than xeljanz.
thank you"
"> until the drug hits the market
this sounds very positive, did he have any idea on timeline? "
"I was just rolled over onto the extension study and my doctor told me that I will be on the medication up until it hits the market! Very exciting, however my doctor lowered my prescription to 8 mg pills instead of keeping me on 12mg. Apparently…"
"It really does feel like forever! Glad your e also having results, I`m excited to continue onto the extension study"
"It took me about 10 weeks to see vellus (that felt like FOREVER) then it slowly darkened and lengthened. Its like watching a pot of water boil...but it does seem to come in steadily once it darkens up. I also had continued shedding when i started,…"
"I started seeing growth after about 2 months, started off very thin and fine and now its all starting to thicken and fill in. Lots of patience is a must. "
"How long did it take for you to see a sign of life lol? I started the pfizer clinical trial about a month ago and I believe I am on 50mg. I haven't stopped shedding yet (albeit maybe slowed down a bit) but I'm slowly heading…"
"Wow thats awesome! I am at about 80-85% regrowth from almost 100% loss on my scalp. I am finishing up my 24 weeks in 4 weeks then going on to the extension study.I definitely have some stubborn spots still."
"i have about 60% regrowth (from totalis) with more vellus coming in on the stubborn parts. i have ophiasis pattern hair loss so sides and back are difficult for me. I am excited to say that the dosage study ends in January and i am moving to the…"
"That’s exciting!! Mine started off as thin belly’s hairs but are starting to get thicker and fill in, especially around my temples. Glad you’re also having success so far :)"
"i am in week 10 and no side effects. inital vellus hair has turned darker and more vellus popping up...very excited."
"I’m in week 9 and have yet to have any side effects. Hair is definitely growing "
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