• Female
  • Chestnut Hill, MA
  • United States

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About Me:
My daughter, Maria, who is almost 5, was recently diagnosed with alopecia. It's been extremely hard for a while, but i am dealing with it now. My main goal righ now is to make her as comfortable as i can about her condition.
Do you have alopecia?
I do not have alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (20 comments)

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At 1:40pm on July 7, 2010, lex said…
ur daughter is sooo cute with her hair or not she will still always be that beautiful lil girl that she is
At 8:14am on August 15, 2009, Cindy said…
Hi Ala,

Hopefully you can get the time off and join us, even if you come at 2pm...I maybe moving our meetings to Sun pm's, b/c I have a schedule conflict with Saturday's. But, nothing is definite yet. I did not know you can use latisse for the brows, interesting. We are just continuing with our thing and progress in due time..Sam seems to be getting brows now, but we will see if they stay. in past she gets afew hair that don't say, but this time she has alot more..Cross your fingers!
At 11:12pm on August 14, 2009, Kayreyn said…
Hi Ala,
Your daughter is too cute! She's beautiful. Yes, the sulfasalazine seems to be a safe treatment, and we're hoping that Haylei's hair continues to return. She is monitored closely by her doctor, and he is in full agreement with her treatment, as sulfasalazine is one of the oldest medications. If your daughter can tolerate sulfa based medicine and your willing to see it thru I think it is definitely an option that should be explored. The mother that recommended to us told us to not expect to see anything for at least 6 months, but within a year it should all return (as her daughters did, and she still has all of her hair). We actually are seeing hair starting to return and it hasn't been a full 4 months yet. So we, like you, are both hopeful and prayerful. Let me know if you have any questions, we're here.
At 6:47pm on August 14, 2009, Cindy said…
Hi Ala, how is your summer going? I hope you get my email about our CAP lunch next month. We would love to meet you. How is your daughter doing? We have a few little girls her age. Cindy
At 5:28pm on July 9, 2009, Cindy said…
Hi Ala, I hope you can make it..Just email if you know ahead of time so I can plan accordingly..But feel free to come on the spare of the moment toWe will resume meeting in Sept in Hopkinton. Cindy
At 9:14pm on July 7, 2009, Cindy said…
Hi Ala, how is maria doing? Are you going to be able to make it on the 19th? cindy
At 8:35am on June 3, 2009, Cindy said…
Have a great time..Keep july 19th open..I am having a CAP Family Day at a park in Attleboro..Info to come shortly..
At 7:54pm on June 2, 2009, Cindy said…
Hi Ala, are you coming on Sunday June 7th to the brunch and fashion event in Chelmsford?
At 12:36am on April 26, 2009, Dotty said…
Hi Ala,
How are you? Your daughter is adorable. My name is Dotty and I'm from NH. I wanted welcome you and to let you know that we are planning an "Alopecia beauty day" at a boutique in Chelmsford, MA, on June 7th as our first official awareness event for our newly incorporated non-profit Alopecia company. They are opening the boutique just for us and we can try on clothes, take lots of pics, and just have fun together. I got at least 40 dress up costumes for the kids. They will look so adorable. We are going to do a buffet brunch at the hotel nearby first and then go to the boutique. I hope you can make it. I know it will be great!!! Please let me know so we can do a head count for the restaurant reservations.
Love and Hugs,
At 8:46pm on April 23, 2009, Cheryl & George said…
hey, your daughter is just beautiful :0) it is a hard thing to deal with and some days you feel differently about it. for a few months i would cry at night but now 2 years into it i really do admire kaiana for how she has dealt with everything. she has amazing support from her friends and her family. if you have any questions on how we dealt with things, feel free to ask (privately) what we did was take the suggestions and used what we felt would suit us. we did the "natural healing" thing with a vibrational therapist.....which ofcourse didn't work :( but you have to try these things for yourself...
take care


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