"Hi T,
Sorry to hear about your relapse. I've had a similar experience on ritlecitinib - the Pfizer medication. It started in June 2022 with mild thinning, then a spot about the same size as yours in November. That progressed…"
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"Hi everyone, working with Shamiul to order baricinix from Beacon. He has advised there is a problem with their invoicing system so I haven't been able to place an order. Problem seems to have been going on for a month now. Is…"
"Thanks for the info. Seems I might be experiencing a similar hair loss situation. Hoping the pills start working again (the way they were before), but we'll see. Haven't had any of the side effects you mentioned (or any other…"
"Hi Devon, you mention that you started losing hair again - is this after taking the drug consistently, or did you take a break? I'm on the ritlecitinib (Pfizer) trial, and had amazing results (almost full re-growth). But started…"
"I've got a 3 month checkup next week (Aug 11) - will let you know if the trial clinic has any update / news to share."
"Hey Mike R - curious as to why you won't be continued on the PF medication. I'm on the trial in Sydney and have been told that I'll remain on a free extension once the trial ends until the drug is approved. Doctor also…"
"I've been on ritlecitinib for just under 8 months and have full regrowth on my head. Currently about 40% of my hair is the original color and 60% remains white. My hair color is continuing to return, and I've noticed that once…"
"Hi Joserid, much better thank you. I'm on the Pfizer Ritlecitinib trial and pretty much at full re-growth. Hair still about 50/50 white/natural color and improving every day. How about you, how are you doing?"
"Hi Joserid, this really resonates with me. I had a very similar experience before I developed alopecia - very stressed, anxious, and life not on the right track. I knew something was wrong with my body, and like you was grateful that the…"
"That's great news! When did you start taking the medication?"
"Hi Linda, I'm participating in the PF-06651600 (Ritlecitinib) trial in Sydney. So happy with the results. My eyebrows are coming in really strong, and the white growth on my head is now re-gaining its natural colour. Hopefully…"
"I'm on the trial in Australia. It's in Phase 3 here and I'm not being paid, though I do receive free mediation. I've been on it since August 2020 and its very effective. Substantial head regrowth (just started…"
"I've been on this trial since mid August 2020, and am AU. I joined during Phase 3, and was provided the full strength, non-placebo version of the drug. Began with a 4 week loading cycle of 4x50gm per day all at once each morning,…"
"Hi, I had my first spot in December 2018 and lost my last eyelash around July 2020 - and so 18-19 months for me."
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- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
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