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Gia
- Female
- Oakland, CA
- United States
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The very real truth about my condition
Started this discussion. Last reply by Ktownnana Jun 30, 2012. 1 Reply 0 Likes
I have alopecia areata. I also have rapidly progressing vitiligo. I have bald spots on the side and back of my head right now with a spot in the front that has almost filled in and diffuse hairloss…Continue
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- Relationship Status:
- Single
- About Me:
- I was diagnosed in 2011 and had one spot that grew back within 8 months. In February 2012, I found that I had 8 spots on my head. Now...2 are new, not possible to hide, and getting bigger every day. I was also recently diagnosed with vitiligo which I understand is related.
I feel overwhelmed...and overwhelming for the people in my life.
Honestly...I am scared.
My fear doesn't define me, but it does add to the roller coaster that is my life right now. I am confident I will get through a better person and at the same time I feel like a toddler who is just learning to walk. I would love to find a few people to hold my hand along the way.
I like hiking and going to festivals in the summer. I am a strange mix of a data driven scientist and a free spirit one-love type. I consider it well-rounded :)
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Yes - I am 18 or older
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I Am Me
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I Am Me
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Hi Gia, Yea, I have vitaligo too. I guess we are just extra special. I'm really missing my hair alot this week though. :(
Congratulations on being featured - best wishes x
Hi Gia! I don't think that there's any right way of living with alopecia. I've had it for so long, and it was under control for so long, that I tend to forget about it. However, I have been wearing hair extensions for probably about 8-9 years. I would have bald spots that I cover by making my hair fuller. I was never bothered by this. I recently lost my hair and eyelashes and at the moment I am mostly comfortable with wearing beanies or hoodies. I am not going for a wig. At least not now. I want to look at the situation square in the eye and deal with it.
The most important thing is your comfort whether it's a wig, a hat, a scarf or a bucket on your head, just go for it. Being comfortable made my hair grow for years.
Gia, I'm so sorry you are having so much trouble. Let me know if I can help.
That's why I'm here for...
Hello and welcome, Gia!
How are you today?
Leslie Ann
Hi! I am working on my Education Specialist II Mild Moderate (Emotional Disturbance, mostly) right now, just a bit northeast of you. Isn't grad school a blast? Cough cough...
Hey there. Coping? Much better than 7 months ago! When the hair started falling out I cried every night. Loved going to work just b/c it kept my mind off reality. Once I would get home the wig would come off and the bald head was a slap in the face. Done all the creams, injections, cleansing diets ect. I've recently just became comfortable with myself. My husband still stays optimistic for me. There are still times I stare at my head and face wishing for hair to return and find the answer as to "why me?" but that passes quickly. I go wigless only in my house and at the gym. Waiting on a Freedom Wig, which I hear is wonderful for people AU like myself. Hope all is well in your world. Ever need to state your frustrations or concerns with this thing holler at me. Take care.
hi gia, not sure if i will be able to make the meeting, but wanted to touch base and let you know i get together with a bunch of local girls once a month to talk hairloss and other related stuff. if you are interested let me know. hope to see you tonight. ox emily
Sorry I cant make the meeting tonight. The group is really a bunch of great people.
Hi Gia,
Welcome to Alopecia World.
Jeffrey
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