Alopecia World
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JEANETTE
- Female
- JERSEY CITY, N.J.
- United States
- Blog Posts (4)
- Discussions (19)
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- Groups (1)
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JEANETTE's Page
Profile Information
- Relationship Status:
- Single
- About Me:
- IM A SINGLE MOTHER DEALING WITH A FULL TIME JOB, SCHOOL , AND WORK. IM TRYING TO GET OUT OF BETTER LIVING CONDITIONS WITH MY DAUGHTER BY DEDICATING MYSELF TOWARDS A DEGREE WITH A BETTER JOB OPPORTUNITIES. HOWEVER, MY ONLY DAUGHTER WHO IS 5 YRS OLD HAS BEEN DIAGNOSED WITH ALOPECIA AND IM HAVING A DIFFICULT TIME CONTINUING MY GOALS TOWARDS BETTER JOB OPPORTUNITIES, AND NOT BEING AVAILABLE TO HELP HER GET THRU THIS NOW I FEEL LIKE GIVING UP ON WHAT I WORKED SO HARD TO GET TO. IM 1YR AND A HALF FROM MY BACHLORS DEGREE..IF I GIVE UP NOW IT WILL BE COLLEGE BILLS PLUS HOSPITAL BILLS AND I CANT AFFORD EITHER NOW. IM UPSET CUZ ALL I WANT IS TO BE THERE 24/7 FOR MY BABYGIRL WHO IS MY HEART AND AS A SINGLE PARENT, SEEMS LIKE ITS GETTING HARDER FOR ME~
- Do you have alopecia?
- I do not have alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
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JEANETTE's Blog
Outshined and overwhelmed by my 5 year old daughter's resilience, endurance & perseverance
Posted on May 14, 2014 at 3:30pm 3 Comments 1 Like
Hi Alopecia World;
My name is Jeanette, and let me introduce to you my Daughter~ Jazzlyn~ As a Parent let me share a PARENT'S... Fears, My Concerns, My Worries, My Knowledge, My Power and Strength, OutShined and Overwhelmed By my 5 year old Daughters Resilience, Endurance & Perseverance
I can sincerely understand how this can be so difficult and hoping and wishing for results the "Fact" that there is no "Cure" for alopecia! Dr, can recommend and make promises but in the end…
ContinueThis is to all of you Dealing with Alopecia , Both Joyous & Painful of All Age Groups!!
Posted on July 18, 2013 at 3:49pm 0 Comments 0 Likes
Looking For Faith & Found it Surrounds Me!
I know you hear me,I know your there, But in my heart some things in life are just not fair. If I look… Continue
Mom and I do not agree on how to deal with my daughter's alopecia! Am I wrong?
Posted on June 6, 2013 at 10:30am 7 Comments 0 Likes
My daughter is only 5 yrs old dealing with this and is in early stages of alopecia. I was secretly hoping it was areata however as of this week her eyebrows n lashes are falling off. I have done all home remedies that has so far allowed her to keep bout 30% of her hair. Still falling off but at a slower rate, i dont know if thats a good or bad thing. My mom had alopecia Universales since she was 15, bak in the 70s wen no one knew about it. She was tortured everyday to a point she moved out…
ContinueHugs & kisses to those who made me see it's just hair! Thank you & now I want to pay it forward
Posted on May 21, 2013 at 11:30am 0 Comments 0 Likes
Reading the struggles and the number of years you have dealt with it was inspiring n heart felt in each case. After, watching the news last night of the Oklahoma tornado and 2 schools including an entire city gone, made me see life is sooooo much more than hair!! How dare i think this could be the worse of all things especially wen i have my baby at my side n her health~I guess its because i was afraid of the unknown. Society has us believing one thing in the fashion world and is it really?…
Continue
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Thank you so much. I have to tell her everyday that she is a beautifull little girl and that she is loved dearly. how did you little one deal with all the hair loss? my princess is talking about wigs.
Dear Jeanette,
I can relate to your story on so many levels. My daughter is 6 and lost her hair or began to lose her hair a little after turning 2. Right now she is completely hair free! She is the most adorable little girl. She is blessed to have her lashes and eyebrows which originally all fell out too and for that little miracle I am thankful.
But just like you said, my daughter knows she is beautiful. She says it and she is told and shown it at home but that does not change the fact that she WANTS her own hair like her mom. So here I am with these full head of thick dark hair and I cant share! I would trade spots in a milli-second!! Im very thankful for awareness and these new dollies that were created to help represent our little girls, but to be honest, by daughter is a girly girl and she wants dolls with hair! she wants to play with the hair and curl thenm and do all the things I did with my dolls. Point blank!
I havent tried any medicines/ointments and I have just recently considered returning back to a Dermatologist who has better insight into Alopecia for small children to see if there are things I can try that would not harm her in the long run.
Unfortunately, I live in Maryland and am not close to you because I would take you up on the offer of play dates. I havent found a single person on here that lives locally and is around her age. Which I know there has to be some other boys and girls around here!! :)
Although, I dont have recommendations for treatment for you, I just want to share with you that it is OK to cry and be frustrated for your child. My anxiety has changed in this whole process and will continue to change for the better and so will yours!
Hopefully, they will find a great healthy solution to Alopecia so one day, we will be talking about remember when.... Keep your head up...kisses to your baby girl and Tongue Out to Alopecia! :)