I have read blogs that were insightful, informing, and raising my spirits blogs and have been up & down emotional roller coaster! Especially, when you read blogs that are depressing, heartfelt, and almost suicidal breaking points at times! Thank You Sincerely for sharing your deepest pain, fears, tears,joys and pleasures!
Looking For Faith & Found it Surrounds Me!
I know you hear me,I know your there, But in my heart some things in life are just not fair. If I look up I see the sky, And I know your up there , to watch my baby angel
deal with so much, its hard to see and It’s hard to hide. Under all that soft blue sky, with them puffy clouds how is it you have a place and cannot be found?
In the end,I fall to my knees,Close my eyes and think of thee.If you are who you say to be,Then please oh please take care of my baby and me.Cause I believe, faith is my strength and prayers are my guide angel like assistance with you all at our side!
I have to admit, watching my 5 yr old deal with this has been extremely difficult. Especially being unable to afford a wig. Which is what she wants. I signed on with a number of non orgs. etc and still await for reply. I thought taking my babygirl to see her princesses would raise her spirits, and it did for short time, however on a trip bak home she saw a bald woman and asked me if she was happy? I told my daughter, why dont you ask her. So, Jazzlyn did and woman said extremely happy, that im about to buy a dress to feel like a princess cuz im beautiful. Then my jazzy replies, u know, im loosing my hair too! Woman says yes but ur still beautiful. My daughter shrugged her sholders n left it their. On trip bak home i asked my daughter how she felt bout womans reply n she said I dont know..trying to get into the thoughts of a 5yr old is hard but when i see her stare blankly into a distance, i cant help but wonder what her thoughts are.THEN I REALIZED ON A TRAIN SHE WAS LOOKING AT HER REFLECTION!! I asked her are u happy, she said "NO!" I asked y? She said cuz im ugly and have no hair,no one is going to know im a girl!My first reaction was to cry, but realized at the end of the day..everytime she looks into the mirror for simplest routines, like brushing her teeth she will always see herself as she does, no one can tell her different! Im trying to find creative ways to build her confidence..but no one can experience what she is mentally facing..unless ur in their shoes!
She smart enuf to realize that mommy n daddys will always love her no matter what..thats y she looks for confirmation from strangers.A 5 yr olds fear of loosing her identitiy as a girl, is a reason for wanting to wear ruffle pink dresses..n bows! If thats what makes the transition easier dealing wit her alopecia every morning in a mirror..then done! Gotta build on my babys strength to help her face the world! We as adults have a hard time dealing with every day issues, work, home, relationships,school, adolesence..etc. even though we know how to deal with things better thru the years & lives experiences, it definately doesnt make things any easier..especially to a 5 year old that acts out on emmotions n doesnt fully understand but just learning about life!
So, to those adults with alopecia..that have positive attitudes and cut those negative people out ur life because those same people shouldnt be given the power to dictate on how u feel about urself Congrats you discovered the secret to life early and how to make it a longer one without the added stress!
to those adults that cant deal with it, Dont become part of the problem but the solution! Share ur experience with teens n ideas in how u dealt with it wen you were younger and how to cope with their emotions! Go on bout ur everyday routines and make a difference whether replying to the needs on a blog, or educating society about Alopecia!
At the end of the day, ur at home with what you earned n worked hard for, educated, and go getter that made no changes in their lives based on a couple of uneducated idiots comments or remarks,and the results of putting them idiots aside?! You living a better positive lifestyle, of gods given beauty of "Life!"
Working wit my baby girls condition, is a work in progress n will deal with the evils of the world for personal gains, when the time comes, but as of now..working on making my babygirl "ENJOY HER CHILDHOOD YEARS!" AND "NOT HER CONDITION!" especially at 5, let mommy introduce you to the tru meaning of life as we avoid this chaotic society of igsignificant diruptance...of hurting people purposely!? Having a picnic in the park and looking at a beautiful world for what it is..n what u can do with it~! I may not have alopecia but my daughter does, i might as well have it because everything she is feeling now & dealing with im feeling in tune with her! She is my Heart that walks out the door everyday..
Counting on the world to be careful wit my heart is unpredictable..so i have no other choice than to count on my baby girls strength~! "Giv'em all you got Jazzlyn, so they can remember you!" Your daddy did and he has Alopecia Universalis too!! Log on.. SalsaFeverOn2.com, This is for all age groups! It doesnt matter what you have, what matters is what you do with it, n what level of success, ur willing to strive for~
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