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National Alopecia Areata Registry
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National Alopecia Areata Registry's Page
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- About Me
- The National Alopecia Areata Registry (NAAR) is an organization sponsored by the National Institutes of Health (NIH) and the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS). The NAAR is comprised of five sites: the central Houston, TX site located at M. D. Anderson Cancer Center and sites in Denver, CO, New York, NY, Minneapolis, MN, and San Francisco, CA.
The Registry will be a resource of clinical data and selected biological research samples, stored in a central repository and available to investigators studying the disease. The Registry does not offer treatment for alopecia areata. But, in collecting genetic and environmental factors that predispose for alopecia areata, we may develop better medications, new clinical trials, and perhaps a cure.
Please visit our website to register with us! Individuals with and without alopecia areata can join!
- Your Website (Leave blank if you don't have one):
- http://www.AlopeciaAreataRegistry.org/
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I found this site and it has some good information.
http://www.americanhairloss.org/hair_loss_organizations/
National Alopecia Areata Foundation
www.naaf.org
The mission of the National Alopecia Areata Foundation (NAAF) is to support research to find a cure or acceptable treatment for alopecia areata, to support those with the disease, and to educate the public about alopecia areata.
The mission is accomplished by:
Funding research and research workshops that add to the scientific knowledge about alopecia areata, its causes, and different treatments
Providing local support and education for people with alopecia areata and their families informing the public about alopecia areata
Advocating the concerns of people affected alopecia areata
Creating and distributing educational materials to health professionals as well as those affected, so that all may better understand alopecia areata.
Please repost to find a cure!!!
Jeffrey
Nice to find you again here.
I hope you will have plenty of people joining the registery.
It's realy the right place.
Good luck
Jérôme (facebook friends and http://mon.alopecie.free.fr)
Our website is:
www.AlopeciaAreataRegistry.org/
Our toll free line is:
1-866-837-1050
Email contacts:
Thomas Rodriguez, Research Assistant, tarodrig@mdanderson.org
Kerri Fernandes, Research Interviewer, kefernan@mdanderson.org