nzahir
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  • Beverly Hills, CA
  • United States
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nzahir's Discussions

Who is on Litfulo (ritlecitinib) and Should I Take It?

Started this discussion. Last reply by Sdsasd Jul 24. 15 Replies

Hi Guys,I have had AU for about 5 years now and have been on Xeljanz for most of the last 5 years. I am a male in my 20s.My hair has probably come back about 2/3, but I have plateud and I was mostly…Continue

Using Rogaine/Minoxidil with Alopecia

Started Sep 29, 2021 0 Replies

Hi Guys, I am a male and I have had AU for a few years, but now a majority of my hair on the front is back with the help of Xeljanz. The crown on the back of my head is still pretty bad and I use…Continue

Topper for the Crown Only vs Topper for the Front of the Head?

Started Aug 29, 2021 0 Replies

Hi Guys,I am a male. I have had AU for a few years now but I have been taking Xeljanz  for a couple of years and and a good portion of my hair is back. The issue is most of the regrowth was when I…Continue

What to do for job interviews while hair is growing back

Started this discussion. Last reply by Andrewa Aug 29, 2022. 4 Replies

Hey guys, I have AU, but hair has been starting to grow on my head for the past month in like 6-7 different spots and it is fairly noticeable now. Still thin, but starting to grow and more and more…Continue

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Latest Activity

nzahir replied to Eldonimo's discussion Doctor wants to switch me from Tofacitinib to Ritlecitinib (Litfulo)
"You are right that higher dosages were only tested for a limited amount of time, I do bloodwork 1-2x a year of course. But the higher dosages helped with results. I also had stomach issues when on increased xeljanz, but perfectly fine here. Like I…"
Saturday
nzahir replied to Eldonimo's discussion Doctor wants to switch me from Tofacitinib to Ritlecitinib (Litfulo)
"@tomasz I have been using Chatgpt a bit for some help as well. Seems like medications can lose efficiency over time https://chatgpt.com/share/68b88d4e-9228-8013-a725-76ac8037d345 "Immune system adaptation (“pathway…"
Wednesday
nzahir replied to Eldonimo's discussion Doctor wants to switch me from Tofacitinib to Ritlecitinib (Litfulo)
"@tomasz I am not on a break and never taken a break since 2018 I was on Xeljanz from 2018-2019 on standard dosage (full year). Grew nothing, so I went to double dose for a while. Grew back probably 1/2-2/3 of my hair, all my eyelashes, most of…"
Aug 27
nzahir replied to Eldonimo's discussion Doctor wants to switch me from Tofacitinib to Ritlecitinib (Litfulo)
"@tomasz I am not on a break and never taken a break since 2018 I was on Xeljanz from 2018-2019 on standard dosage (full year). Grew nothing, so I went to double dose for a while. Grew back probably 1/2-2/3 of my hair, all my eyelashes, most of…"
Aug 27
nzahir replied to Eldonimo's discussion Doctor wants to switch me from Tofacitinib to Ritlecitinib (Litfulo)
""-I thought you have AU and zero hairs. If you have small bald spots then this might support immunosupression of JAK inhibitors." I had Alopecia with 1 patch in 2016-2018, then I had AU. What is it considered now if I have my beard,…"
Aug 24
nzahir replied to Eldonimo's discussion Doctor wants to switch me from Tofacitinib to Ritlecitinib (Litfulo)
"So Egcg definitely helped my beard about 4-5 years ago, but  I was also in the phase of growing and not shedding. Guess it cant hurt to try these+Litfulo, but unsure what I should be doing honestly.  I can also look to switch to…"
Aug 22
nzahir replied to Eldonimo's discussion Doctor wants to switch me from Tofacitinib to Ritlecitinib (Litfulo)
"You think those supplements+Litfulo can help? I took RSV for some months, but would upset my stomac iirc.  I feel like Curcumin will do the same, but not sure You use any of those? I see that Leqselvi 8mg is twice a day....so isnt that…"
Aug 21
nzahir replied to Eldonimo's discussion Doctor wants to switch me from Tofacitinib to Ritlecitinib (Litfulo)
"When you said you were taking 12mg twice daily, did you mean 24mg total or 6mg each time? The studies for Leqselvi didnt really mention many people on adverse side effects. Am I missing this?  Do you know of any supplements that block Jak 1…"
Aug 20
nzahir replied to Eldonimo's discussion Doctor wants to switch me from Tofacitinib to Ritlecitinib (Litfulo)
"Ah I always thought 8mg of Baricitnib was available or mabe I had read some stories of people taking it for a short time Does anyone here/that you know of take Leqselvi 12mg for even a short time? I wonder if the side effects of Leqselvi 8mg vs…"
Aug 19
nzahir replied to Eldonimo's discussion Doctor wants to switch me from Tofacitinib to Ritlecitinib (Litfulo)
"Thanks for the last post, I couldnt reply to it there so replying in two spots Leqselvi 12mg shows better than Olumiant 8mg no? I thought Leqselvi should be better since it targets Jak2 less. Am I wrong on this? Also what does this mean "but…"
Aug 19
nzahir replied to Eldonimo's discussion Doctor wants to switch me from Tofacitinib to Ritlecitinib (Litfulo)
"Thank you! Did you respond to Leqselvi and Rinvoq the same or which was better and how much regrowth on each?  Why should I do Olumiant over Leqselvi? I do the see the data on 8mg of it vs 12mg of Leqselvi is slightly better, but it also…"
Aug 13
nzahir replied to Eldonimo's discussion Doctor wants to switch me from Tofacitinib to Ritlecitinib (Litfulo)
"No worries, I sometimes forget to check here for long periods of time You said "Rinvoq shows efficacy in cases refractory to Olumiant and Litfulo". Anywhere to read up on this or how did you learn about this? I believe I can get Leqselvi…"
Aug 5
nzahir is now friends with SaugaD, MD, Apple and Eldonimo more
Aug 5
Sdsasd replied to nzahir's discussion Who is on Litfulo (ritlecitinib) and Should I Take It?
"Cryptocurrencies are transforming the global economy by introducing new financial products like crypto loans, where people use their crypto holdings as collateral to borrow money without selling assets. This helps investors maintain their positions…"
Jul 24
nzahir replied to Eldonimo's discussion Doctor wants to switch me from Tofacitinib to Ritlecitinib (Litfulo)
"Hey tomasz777321  How was the Leqselvi for you vs Rinvoq vs LItfulo? Any reason you never too baricitinib?  I am currently on Litfulo (after about 4 years of Xeljanz), but I think I am starting to shed a bit and its not working too…"
Jul 11
Eldonimo replied to nzahir's discussion Who is on Litfulo (ritlecitinib) and Should I Take It?
"Can you please update us on what ended up happening please!! Feel free to DM me also. Thank you!! I am advised to make the switch from xeljanz to Litfulo as well and I am scared to say the least. "
Apr 13

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Alopecia areata
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