Replies to This Discussion

Permalink Reply by Missy on August 18, 2008 at 2:47pm

hey,

all of my regrowth always falls out it will come in and get some what long few in. or so and then it starts coming out some times i think it does this just to get our hope up and then BAM its gone its kinda like our hair is playing a mean trick on us

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Permalink Reply by Rose Marie' on August 18, 2008 at 5:00pm

Hi

I don't know if there are any norms with alopecia areata. My daughter has grown her hair twice in the last five years only to go on and become AU twice.

It is difficult to deal with so she decided a long time ago not to deal with whether her hair was there or not but to concentrate on how she wanted to present herself. This is never an easy condition to deal with and I agree when hair is coming and going it is like a big tease. It's a horrible condition isn't it. :(

Rosy

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Permalink Reply by Kath on August 19, 2008 at 2:01am

Mine also, like others, has grown a fallen out. The first time I was obviously excited, but then after it fell out I realised that it was not meant to be. A couple of times since I have the soft fuzzy regrowth, but it is more a pain now as my wig doesn't fit as well. I have well accepted that it will not grow back for me and so do not get my hopes up (other people do though!!!)

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Permalink Reply by Carmella on November 24, 2008 at 10:54pm

"Other people do thought" I can so relate to that. It's the hardest part for me about alopecia... that everyone, my sons, husband, grandparents, fellow students, instructors, strangers, EVERYONE, wants it to grow back so badly. I know it will never be, I've been sentanced to torture for one reason or another, but the pain all stems from my helplessness in saving them the agony.

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Permalink Reply by Lesley Berry on August 19, 2008 at 7:47am

Thanks for your replies. I will carry on as normal then, shaving it off when I can't stand the moth eaten teddy bear look any longer. I accepted a while ago that there was nothing I could do about it falling out but I just hoped that there was a possibility it was going to come back. Oh well, what will be will be. Thanks again.

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Permalink Reply by Carmella on November 24, 2008 at 10:50pm

I am so sorry! I know your hopes must have been high. A certain length though huh? I find that fasinating. How long was it? Was it everywhere? I had a lot of regrowth for the first time in the six years I've been with AU but when it fell out my stress level was through the roof. I didn't even consider the length before. I wonder if we were about the same there...
XOXO
CAR

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Permalink Reply by Lesley Berry on January 13, 2009 at 7:35am

I'm going through the regrowth thing again at the mo and it's getting to the point where I'm keeping my fingers crossed again... My hair was originally dark blonde but now I'm a brunette with a lot of natural gray/white highlights. To think some people would pay to have this look, I'm sorry if I sound strange but I find that laughing about it an easier way to cope than any other way. Thankfully this time I didn't lose my eyebrows, but they haven't completely regrown from the first loss so they still look a bit strange. i seem to be in a six monthly cycle which is a bit wierd and the docs can't really put it down to anything in particular that's happening. I'll just have to wait and see what happens this time.

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