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AA is Worsening, Need Help!
Hey guys, so I need some help and here is my story. I am a 22 Year Old Male btw.
Whenever I was a child, around say 6-7, my mom realized I had small patches around my arms and legs(still have). Doctors said it was AA but we did nothing for it b/c it was nothing serious.
Fast forward to when I was like 19-20(2 years ago) and I got a random small patch on the back of my head in the right bottom corner. I would get cortisone shots for like a year(once every couple months, like 5-6 in total, maybe more.). Patch got a little smaller, but not by much, so I stopped them for a few months so b/c I was frustrated and wanted to see if the shots were really doing anything. Fast forward to last couple of months and the patch is now bigger (have started shots again), a lot of my beard and mustache is gone, hair loss on legs and stomach, lost 1/3-1/4 of my eyebrows, and I just see one of my eyelashes starting to fall.
I have gone to a specialist and she prescribed me dpcp last week, but its gotten worse in the past week even.
I am considering taking Xeljanz, but I am scared of the side effects. Is anyone here on Xeljanz?
I have been using makeup to hide it and it works ok, but I can't cover all my eyebrows, eyelashes, and possibly more of my hair forever.
Any advice would help
Replies to This Discussion
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Permalink Reply by Nor75 on
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I have a similar AA like you. Body heavily affected - a bit face and scalp, and had worsening of the latter beginning of this year. A dermatologist in Oslo prescribed Simvastatin/Ezetimibe because the AA is still patchy. And Bingo. It stopped the progress, enabling me to treat the spots and reduce the face and scapl AA back to almost zero.
It is a statins drug with immunmodulative effect and in many people with patchy AA it helps preserving the immunprivilege of the remaining hair follicle. The AA does not progress anymore and has zero side-effects. It was remarkable as my shower shedding went to ZERO after two weeks taking the drug. A family member of mine with patchy AA took it as well - and same effect.
However it does not work alone. One has to continue with topical treatment. I used Dithranolcream (twice daily 60minutes). You are lucky to have DCP. In Norway, they do not allow people to use DCP or SADBE in AA, which is very bad.
In addition I took enhanced Omega3/VitaminD supplementation (12 fish oil capsules a day distributed over 12 hours). Plus Querciticin 500mg daily and Zink of course.
As I recommend always in AA, you have to act quickly.
Good luck and god's blessing!
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Is the drug like an immune system inhibitor?
I see it doesnt help most people, but some respond well to it
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It helps people with fresh patchy AA. It is a stopper, not a grower.
Try it as an emergency measure.
It is a cholesterol inhibitor but the formulation inhibits one enzyme being necessecary
for AA to progress. It may work or not, but it is worth a try.
I have witnessed it working two times - it was amazing. Shedding went down 90 % after one week.
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Permalink Reply by NaturalAlopeciaWellness.com on
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Hi,
Sorry to hear that your alopecia has come back. My daughter is 4.5 and has had alopecia for 3 years but due to her age, we never went for any medication or steroid treatment. After 3 years her hair is getting better instead of progressing to totalis (fingers crossed).
Suppose you are already eating a healthy and balanced diet and ensure that get all the basic nutrition you need. This is key in my opinion, and is the basic that anyone trying for hair regrowth should already be doing. Choose shampoo that is as clean as possible (no funky chemicals) and avoid commercially made hair products unless necessary.
Topical treatment using hair healthy oils (such as kukui nut, castor, or coconut oil) along with essential oils has really helped us. Be diligent in applying it on the scalp and hair daily. For a less oily mixture, dilute essential oils in good quality ginger juice (ginger has been shown to have compounds that act as JAK inhibitors) which may help in hair loss/growth.
Last but not least, my daughter's alopecia is an autoimmune condition (the body's immune system attacks the follicles). Recently I've been reading up a lot on the science of rebalancing our immune system so that we fix the root cause itself. The fact that our body mistakenly attacks our own hair follicles is the problem. I have found out that there are several plant foods that posses immunomodulating properties, for example ABM mushrooms, turkey tail and ganoderma mushroom, panax ginseng to name a few. I have started my daughter on these foods with the hope that the problem will be fixed from the source, but in the meantime the topical treatment definitely helps too.
All the best.
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Permalink Reply by AlopeciaAngel.com on
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Have you tried the natural and holistic route? I only suggest this route, because it has given me results. After two years of trial and error- I have my hair and health! (Thank the Lord and the Heavens) and am now on a mission to help others too. I have posted on my IG account, (same name) with so many articles about people doing treatments, meds, and all with no results or horrible side effects that have led to other illness and issues. I wrote a book and researched so much and am please to share that my client also see results. Try going holistic. It will take time, but your body will heal from the inside out. Don’t ever expect overnight success. No pill will give you that, bu rest assured, mother nature and natural healing has no negative side effects. Wishing you all the best. www.alopeciaangel.com for more info, pictures, testimonials, my story with pics and much more!
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