Hello all. I'm very new to this all. I was hoping someone else here would be able to talk with me about what I have. I have alopecea areata incognita (diffuse alopecia areata). I was just diagnosed a couple weeks ago. I had been to a different doctor for it a month prior but she was of no help and just said she didn't know and to be thankful with the hair i still had. I left the office in tears so I got a second opinion. Which I got an actual diagnosis.

A little history about myself. Im 28 years old with 2 children and a wonderful husband. I have been living with celiac disease my whole life but was only diagnosed with it 6 years ago so I'm on a 100% gluten free diet. Everything was normal until I had my second child back in november of 2016. A month later, my father was diagnosed with stage 4 cancer out of the blue. I had my normal post partum hair loss in january of 2017, just like with my first child. There was lots of new stress with now being a mother of 2, a dying father, and the heath of my youngest (who is now 2) who now has celiac disease as well, same with my oldest who is now 5. 

My father passed July of 2017. I was his care giver, watching the cancer eat him away. Both my mother and myself were there for his last breath, of which I was honored to be there for him. A couple months after that I started shedding hair like crazy, but I knew stress can do this. I had pea size bald spots and major thinning. Even eye lashes and eye brows were affected. Then november 2017 I was sent to the ER via ambulance with a severe migraine, which I have never had before. They thought i had a brain bleed which thank God i didn't. They had to pretty much sedate me to make it go away. Anyways... been having then ever since. It's from my neck and stress.

Since then the hair falls out, then will stop. Itching and tingling with some pain on my scalp like a bruise but I couldn't see anything.  I saw my hair thickening back up until this past summer. I had gotten sun burn on the top of my head. My part was getting wider. Then October of this year I was having itching and I took a picture of the back top part of my head and I could see my scalp! I have more hair than the average person. I would donate my hair all the time. Every 1.5 years, almost 9 inches. Its thick, curly, frizzy, wavy, like an afro, and is heavy and voluminous. It's hot and it has never curled the same way twice so I always keep it in a pony tail or bun if I go out. I'm a stay at home mom so I keep it down during the day, looking like a just got electrocuted lol its untamable lmao. 

So after I took that picture, I could see the thinning EVERYWHERE! It's now the end of november and I've lost 50% of the hair on my head, and body. I used to get bullied a bit for my thick peach fuzz everywhere, which is now gone so no complaining there lol. I've lost 80% of my nose hair even and am constantly getting colds from it. I have bald patches all over my legs and pubic region. And even in my arm pits. Half of my right one is just bald, working from the outside into the middle. Looks so weird lol. I am constantly fighting balding spots in my eye brows and lashes, but they will grow back in, then the same areas fall back out a month later or so.

For 3 weeks my hair shedding slowed down, but has started up again. Big globs of hair in the shower. So... lol sorry this is so long. But this is my story. Has anyone here gone through something like this? I could care less for the hair below my head lol but did any medicine work for the head and eye brows? I know if you stop treatment it can all start up again. 

Oh, and all my lab work came back normal. Hormones, thyroid, CBC, etc. No one else in my family has had this issue before.