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Permalink Reply by ronda on April 11, 2009 at 9:47pm

HI Janet, i'm RONDA I AM UNIVCERALIS , I USE TO BE TOTALIS BUT 4MONTHS AGO I LOST MY HAIR ON ALL OF MY BODY. IT HAS'NT BEEN EASY AS YOU MUST KNOW . I MISS MY EYEBROWS AND EYELASHES THE MOST. I GOT USE TO HAVING NO HAIR ON MY HEAD BNUT THE FACE IS REALLY HARD TO ADJUST TO. IF YOUR INTERESTED WITH CORRESPONDING WITH ME , I'D LOVE IT.

Permalink Reply by Mar S on April 16, 2009 at 8:44pm

I've had AU for about a year now. It started 3 years ago with AA, responded to corticosteroid treatments, then lost everything last year. I wear hats and scarves mostly, have a wig but can't really get used to it. I work out a lot and hats seem to breathe better. I can't figure out what to do about swimming though--the swim cap thing isn't for me. If anyone has any ideas I'd appreciate hearing them. About 6 months ago, my nails started turning green, and separating from the nail beds. Dr said its called pseudomonas and is related to AA. Now getting steroid injections in my fingers (really hurts more than the scalp) but so far seems to be helping. We'll see. I hate not having nails, it's more than a cosmetic problem, it's a functional one. It's hard to work without nails, I can't get my kids shoelaces unknotted! Good to hear from everyone.

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