Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

Members: 851
Latest Activity: Sep 24, 2023

Discussion Forum

Stronger immune systems?

Started by Laura Adams. Last reply by Simahrya Apr 7, 2019. 43 Replies


Started by Stephanie. Last reply by Simahrya Apr 7, 2019. 64 Replies

alopecia univeralisis

Started by janetparsons. Last reply by Kimmbe Oct 12, 2017. 22 Replies

Comment Wall


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Comment by Denise on September 24, 2023 at 9:06pm

I'm 38 now - i diagnosed March 2023 with AA, biopsy confirmed it was AT, then went to AU.  Sweating is worst and I currently have social anxiety but i'm trying my best to overcome this feeling also at the same time figure out why. 

Comment by EmJay417 on July 8, 2017 at 12:40pm

Michael - sweating with no eyebrows is the WORST!!!! the first time i went for a run after losing mine was awful! i had to keep wiping my eyes and couldn't see a damn thing! Not to mention the stinging! yes. I feel ya, brother. I feel ya

Comment by Alopecian Beauty Mixer on May 31, 2017 at 5:50am
Hi guys I'm having a special Event called:
Alopecian Beauty Mixer (Charity Event)
(STRICTLY ENFORCED DRESSCODE NAVY BLUE & WHITE /CREAM ONLY) September is Alopecia Awareness Month thier ribbon color is navy blue so September 30, 2017, We'll be launching a fundraising campaign to support individuals who suffer from the diseases Alopecia Areata & Cancer. This is a family friendly event that will include networking, food, drinks, special guest, custom wig give aways/demos, complementary massages, makeovers and A lot more. Including a bartender for 21+ participants! We also will have live performances/Celebrity photographers are going to be in the building for personal and group shoots. Why not have a amazing time while supporting a positive cause? Lets come together as a community and show support, love, while giving back to one another! See you there...
Comment by Michael on May 27, 2017 at 8:24am

Just figured what it is like to sweat and not have eyebrows. Absolutely not fun at all! These days my eyes keep watering from the wind, or sting from sweat running into my eyes..... Nastiest thing I experienced so far from this disease.

Comment by Michael on March 31, 2017 at 11:35am

One sign that you know more than your doctor is when he reads up on web pages at your visit....

I went by him yesterday to see if another blood test could be an idea and that's what happened.

The only treatments i have been confronted with so far, are actually lowering the immune system. Honestly I think I have enough diseases for now and need not lower my immune system to welcome even more.

Yes it looks different, but it's only hair. I have come to terms with it by now even if i feel i look strange when taking off my glasses. The picture is already outdated as I now have only 5 or 6 hairs left in my left eyebrow.

The feeling of having baby skin is more apparent to me than the reflection of my mirror.

Wish you all a great weekend. Spring is comming here in DK so best get some sun on the scalp while it doesn't burn ;-)

Comment by Tom on March 19, 2017 at 7:12pm
I'm 59 and have had AU for 40 years. It really is a rollercoster of emotions. I think I've been through pretty much everything life can throw at me. But yes I still have days that I have to talk myself through. Days where I doubt everything about myself. Just know that you can't give up no matter what.
Comment by JeffreySF on January 12, 2017 at 1:19pm

Hi Michael,

Having alopecia is a rollercoaster of mixed emotions for everyone. Especially so as you transition through stages of your new appearance.

Comment by Michael on January 12, 2017 at 10:59am


I have had AU for about 6 month now, and dont know anyone with the same disease. So I have nothing to compare with, but suspected early on that it was Alopecia. December 20th I was diagnosed AU and have accepted it for what it is.

I do, however, find myself doubting but maybe that is due to a new found attention to any hairs at all.

Fact is that I am now bald, and have lost my eyelashes and eyebrows well on the way to disappear.

Does anyone else have these mixed emotions?

Comment by Modern Monarch on October 9, 2016 at 8:52pm

Let's make bald great again! :)

Comment by maria on July 22, 2016 at 8:29am

im 42 and had AU for two years now its really affected my self confiedence i feel fake with my wig false eyebrow and eyelashes want to talk to people who really understand how i feel


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