Anyone tried Ruxolitinib?

I have tried Xeljanz and was a non responder even at higher doses. My doctor has suggested I try Ruxolitinib if he can get it approved by insurance. Has anyone tried it and had success?

Thanks

   Mark

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Permalink Reply by Kckc on February 21, 2020 at 8:13pm

I am in a clinical trial with ruxolitinib, and I have had over 50% regrowth! 

Permalink Reply by Anna on February 24, 2020 at 12:09pm

Hey Mark - You know my story - NO response whateoever to Xeljanz, and now 100% response on ruxo after 9 months.

Anna

Permalink Reply by mtran2000 on February 24, 2020 at 7:56pm

I am trying to get insurance to cover it, so far no luck.

Mark

Permalink Reply by Kckc on February 24, 2020 at 10:08pm

Keep updated !!

Permalink Reply by Anna on March 1, 2020 at 6:46pm

Good luck - keep appealing!

Permalink Reply by Football fan on February 25, 2020 at 2:12pm

Hi Anna how long and what strengths did you try xeljanz.Im not a responder either have been on 20 mg for for 8 months and various other strengths for a couple years.Getting my best results on 20 thanks to Beacon but not enough to get rid of the wig and actually I feel like my eyebrows have thinned a bit.Im ready to try the barcitinib which I’m lead to believe is similar to ruxo.Im giving it  another month or two and will have to make the decision.

Permalink Reply by Anna on March 1, 2020 at 5:13pm

Hi there - I went up to as high as 60 mg Xeljanz for  a couple of months - in total I was on Xeljanz for 11 months, mostly at 50 mg (25 mg twice a day). I did not repsond at all - and when I say not at all, I mean not at all. Not one vellus hair.

And I have responded to ruxolitinib - I have been on it since May, and have almost complete regrowth - just still missing body hair which I can live without :).

I am, however, 20 pounds heavier on ruxo, which is really tough.

Permalink Reply by Football fan on March 3, 2020 at 1:43pm

Thank you Anna I have another question did you go immediately from xeljanz to ruxolitnib?And did you taper down from the xeljanz?

Permalink Reply by Anna on March 4, 2020 at 8:22am

No - in between Xeljana and ruxo I tried Dupixent. I did not taper when stopping Xeljanz. My opinion (based only on my experience and discussion with other patients - I am not a doctor!) is that there would be no need to "take a break" between Xeljanz and ruxo. I would go straight from one to the other.

Permalink Reply by Football fan on March 4, 2020 at 4:34pm

Thank you Again Anna

Permalink Reply by kevin on March 4, 2020 at 7:57pm

hello anna i'm on xeljanz for 2 years i don't have a complete regrowth to try dupixent because i have an appointment with my dermatologist to try dupixent. have you had any results? how long have you been on dupixent

Permalink Reply by Anna on March 6, 2020 at 9:57am

Salut Kevin - Dupixent n'a pas marche pour moi du tout. Je l'ai pris pendant 4 mois... rien.. La seule chose qui a produit des resultats pour moi c'est ruxolitinib - je le prends depuis 10 mois et j'ai repousse 100% de mes cheveux. Je n'ai eu aucun resultat avec Xeljanz non plus et je l'ai pris pendant 10 mois a 60 mg par jour. Je te conseillerai d'essayer ruxolitinib.

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