Alopecia World
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From Totally Bald to Hair Regrowth in One Month! (UPDATE: Six Month Regrowth Pictures)
I first noticed my hair falling out in the spring of 2009.Being a black woman who had been wearing braids off and on for many years, I thought braiding my hair too tight was the problem. I took out the braids but my hair continued falling out. I was diagnosed with Alopecia Areata a year later & given 5 weeks of Prednisone. Needless to say, that didn't help at all. As I continued losing hair I researched the different types of alopecia on the internet. When I started losing my eyebrows & eyelashes I knew I had Alopecia Universalis. I tried to decrease the stress in my life & kept praying that one day my hair would spontaneously grow back on its own. While on vacation last year I met a man with the same autoimmune disease who told me about Xeljanz. Finally! A cure!!! But the drug costs over $3000 a month and my insurance would not cover it. My cousin was familiar with the fact that there are discounts available for many expensive medications. I called Pfizer and found out they have a hardship program (Xelsource)for low income patients which allows you to receive Xeljanz ABSOLUTELY FREE!!! They will mail you two forms for you and your doctor to fill out and once it it is verified that your income is low enough and your insurance denies coverage they will Fed Ex Xeljanz directly to your home for FREE! They send you a 30 day supply (two small pills a day) each month. What has really inspired me are the photos of another AU sufferer whose hair started growing back after a month on Xeljanz. She has been on it 6 months now and recently had her first haircut in 4 years. She is sporting a cute, short hairdo. Check her out at Pikore.com the alopeciaexperience instagram. I just started Xeljanz 3 weeks ago on July 28th and hope to be posting pictures of my hair regrowth soon to share with all of you! UPDATE: Saw light blonde, spiky hairs on September 1st after one month on drug! Went to doctor this week and now have dark terminal hairs, mixed with blonde, on my scalp and eyebrow and eyelash regrowth. UPDATE: 3 months, hair getting darker and longer, eyebrows growing in on both sides, a few eyelashes on my left upper lid. See pictures below. UPDATE: 4 months, started taking Biotin and upped doseage to 3 Xeljanz a day. Tons of new growth in resistant bald patches and scalp hair is longer and darker. Eyelashes emerging from both sides. I bought my first mascara in 6 years. Waiting for a few more lashes on right side to use it. Have lots of eyebrows on both sides. Go see my doctors this week on Thursday. They will be TOTALLY shocked and amazed at my progress since last appointment in September. Keep the faith everyone. Xeljanz works!!! UPDATE: Third Doctors' Visit: My doctor's are at the Dermatoligy Clinic at the University of California, San Francisco (UCSF) Boy were my they EXCITED about all my hair growth during the last 3 months! The last time they saw me I had tiny white spiky peach fuzz, with a few dark terminal hairs mixed in. This time I have long dark patches of hair almost an inch long, with regrowth of about 80 percent of my scalp! In between the dark patches, I have short spiky blonde regrowth in my former bald spots. That regrowth is barely visible on camera right now but the doctors saw it and ran their fingers over my entire scalp. Two sets of doctors, nurses and residents came into the room at separate times because everyone could not fit into the examining room at once. Plus I brought a friend with AU and his parents with me to meet the doctor's. Everyone was laughing, happy and amazed at my growth. Each set of doctors took pictures of my complete scalp, eyebrows and eyelashes. The doctors want the pictures for a future Grand Rounds or Dermatology Conference so they can present my case to other doctors and medical students at the University. I'm so happy that my regrowth on Xeljanz will be used to give hope to others! More details below about my friend with AU who came with me to see the Clinic and meet the doctors.
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Replies to This Discussion
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Permalink Reply by Tonny_Le on
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Wow that's totally awesome! I'm so happy for you. I'm 19 and my parents have a low income. So if i could get this product for free? Are there are side effects?
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Permalink Reply by Xeljanzmiracle on
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Yes. Call Xelsource at 1-855-493-5526. They can tell you about special hardship program for low income individuals. Ask them to mail you the forms you and your doctor need to apply for program. You will have to send in proof of income too. They will send you a list of side effects with the forms. But you can also look them up online. The drug is already out for rheumatoid arthritis so it is available at pharmacys with a doctor's prescription. But Pfizer has their own pharmacy in Florida and will ship the drug to you for free if you qualify. They have a co-pay card too for discounts as well. Here is my question to you. How do I show my picture?
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I can give you my email? I'm really curious on this product. I had 100% hair loss and last year my eye brows grew back but now are falling off again. So I really want this product.
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Did you call Xelsource? That's your first step.
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Hi! Just out of curiosity, have you had any side-effects using Xeljanz?
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Nothing negative. I'm sleeping a little more, but that's a plus for me. I saw peach fuzz after one month, and now have spiky, little blond hairs on my scalp. Saw a few eyebrow hairs earlier this week!
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Permalink Reply by asp2014 on
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That's great, I'm so happy for you. Cheers to a successful recovery, can't wait to see your progress. Seeing people go on this journey has really given the community plenty of hope! I'm rooting for you!
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Thanks SO MUCH! What about yourself?
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It is based on your individual income.
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I am happy for those who qualify. I do see it a bit unfair however. I have a job and do not qualify for FREE Xeljanz. My income is still not enough to afford nearly 3k a month for medication, after all, I do have other bills. It's really a shame that in our society we have such inequality. No knock on those who are eligible, but I too feel the pain from Alopecia.
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Please call Xelsource. They have other programs with a co-pay card available. You may be able to get a HUGE discount.
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Terrible potential side effects. It's an immune modifier. Increased risk of cancer and serious infections that can lead to death.