Alopecia World
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From Totally Bald to Hair Regrowth in One Month! (UPDATE: Six Month Regrowth Pictures)
I first noticed my hair falling out in the spring of 2009.Being a black woman who had been wearing braids off and on for many years, I thought braiding my hair too tight was the problem. I took out the braids but my hair continued falling out. I was diagnosed with Alopecia Areata a year later & given 5 weeks of Prednisone. Needless to say, that didn't help at all. As I continued losing hair I researched the different types of alopecia on the internet. When I started losing my eyebrows & eyelashes I knew I had Alopecia Universalis. I tried to decrease the stress in my life & kept praying that one day my hair would spontaneously grow back on its own. While on vacation last year I met a man with the same autoimmune disease who told me about Xeljanz. Finally! A cure!!! But the drug costs over $3000 a month and my insurance would not cover it. My cousin was familiar with the fact that there are discounts available for many expensive medications. I called Pfizer and found out they have a hardship program (Xelsource)for low income patients which allows you to receive Xeljanz ABSOLUTELY FREE!!! They will mail you two forms for you and your doctor to fill out and once it it is verified that your income is low enough and your insurance denies coverage they will Fed Ex Xeljanz directly to your home for FREE! They send you a 30 day supply (two small pills a day) each month. What has really inspired me are the photos of another AU sufferer whose hair started growing back after a month on Xeljanz. She has been on it 6 months now and recently had her first haircut in 4 years. She is sporting a cute, short hairdo. Check her out at Pikore.com the alopeciaexperience instagram. I just started Xeljanz 3 weeks ago on July 28th and hope to be posting pictures of my hair regrowth soon to share with all of you! UPDATE: Saw light blonde, spiky hairs on September 1st after one month on drug! Went to doctor this week and now have dark terminal hairs, mixed with blonde, on my scalp and eyebrow and eyelash regrowth. UPDATE: 3 months, hair getting darker and longer, eyebrows growing in on both sides, a few eyelashes on my left upper lid. See pictures below. UPDATE: 4 months, started taking Biotin and upped doseage to 3 Xeljanz a day. Tons of new growth in resistant bald patches and scalp hair is longer and darker. Eyelashes emerging from both sides. I bought my first mascara in 6 years. Waiting for a few more lashes on right side to use it. Have lots of eyebrows on both sides. Go see my doctors this week on Thursday. They will be TOTALLY shocked and amazed at my progress since last appointment in September. Keep the faith everyone. Xeljanz works!!! UPDATE: Third Doctors' Visit: My doctor's are at the Dermatoligy Clinic at the University of California, San Francisco (UCSF) Boy were my they EXCITED about all my hair growth during the last 3 months! The last time they saw me I had tiny white spiky peach fuzz, with a few dark terminal hairs mixed in. This time I have long dark patches of hair almost an inch long, with regrowth of about 80 percent of my scalp! In between the dark patches, I have short spiky blonde regrowth in my former bald spots. That regrowth is barely visible on camera right now but the doctors saw it and ran their fingers over my entire scalp. Two sets of doctors, nurses and residents came into the room at separate times because everyone could not fit into the examining room at once. Plus I brought a friend with AU and his parents with me to meet the doctor's. Everyone was laughing, happy and amazed at my growth. Each set of doctors took pictures of my complete scalp, eyebrows and eyelashes. The doctors want the pictures for a future Grand Rounds or Dermatology Conference so they can present my case to other doctors and medical students at the University. I'm so happy that my regrowth on Xeljanz will be used to give hope to others! More details below about my friend with AU who came with me to see the Clinic and meet the doctors.
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Replies to This Discussion
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Permalink Reply by singh on
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Hi ! Yes I finally got it! I got 2 boxes to start and can go back in January for another 2-3 boxes as its a new calendar year ! I have only just started so yeh that is great to know I will have a few tonight then :). And your growth is coming along amazing ! So happy for you ! I seen your friend on intragarm although she is losing hair on one pill a day. I still see positive in this
. 1) she was AU for nearly 4 years and has had full regrowth.
2) she was on 1 pull for 3 months maintaining most of her hair which to me you can lower your dose for atleast 2 months and back up to 3 pills for some time ( everyone is different like.
3) she is back on 2 pills so am praying she gets the hair back to full regrowth mode which will tell us it can come back and will likely be the maintance dosage.
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Permalink Reply by Xeljanzmiracle on
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Great Singh! So you need to take pictures now so you can show us the difference later. I'm SO HAPPY AND EXCITED for you! All of your efforts to get Xeljanz (going all the way to New York from UK) have paid off! What date did you start? I'm hoping you respond in a month or so like me.
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Thank you it's only been a few days since started just got bk from New York, and thank you I hope so! I've been AU for 6 months so just keeping my hopes stable atm just go with the flow I guess. I have took pictures yeh with my dermatologist too. Am praying for some improvement and am praying for everyone else on here! Everyone of us deserve out hair and happiness back.
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If you want to see how I looked before, go to the first picture after the beginning of my discussion. I would like to see a picture of you as well, if you can upload it.
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Hi, I'm from the UK too, may I ask are you getting the discounted Xeljanz in New York, and if so are you able to get another discount in the new calendar year? Thanks
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Hi Villa van. Yes mate I used a co-pay card which can get you 3 boxes but I could only get 2 just about because the price went from 2700 to 3400 dollers! And yes from January u can apply again as its a new calendar year not from the date you got them the previous year.
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That's really good, thanks for letting me know and I hope you see regrowth soon.
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Three month update: Hair longer and darker, eyebrows coming in on both sides, a few eyelashes on left eye. For some reason the left side of my scalp, etc is more dominant. Picture below
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Hey everyone, during the last month I have has so much growth! I started taking Biotin and recently upped my dosage to 3 pills day. I was able to increase my dosage because Pfizer switched pharmacies and the new one sent me my new month's supply 3 weeks early. There are some more exciting developments, but I'm going to post them on my Xeljanzers Where Are You? discussion. Tomorrow I'm meeting a family from Turkey whose son has AU to help him apply for Xeljanz. The father is going to help us know which Pharmacies in Turkey we can use to obtain Xeljanz at a HUGE discount for those in Europe who can't obtain it there. Lots of good things are being accomplished by all of us supporting, encouraging and sharing information with each other!
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