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From Totally Bald to Hair Regrowth in One Month! (UPDATE: Six Month Regrowth Pictures)
I first noticed my hair falling out in the spring of 2009.Being a black woman who had been wearing braids off and on for many years, I thought braiding my hair too tight was the problem. I took out the braids but my hair continued falling out. I was diagnosed with Alopecia Areata a year later & given 5 weeks of Prednisone. Needless to say, that didn't help at all. As I continued losing hair I researched the different types of alopecia on the internet. When I started losing my eyebrows & eyelashes I knew I had Alopecia Universalis. I tried to decrease the stress in my life & kept praying that one day my hair would spontaneously grow back on its own. While on vacation last year I met a man with the same autoimmune disease who told me about Xeljanz. Finally! A cure!!! But the drug costs over $3000 a month and my insurance would not cover it. My cousin was familiar with the fact that there are discounts available for many expensive medications. I called Pfizer and found out they have a hardship program (Xelsource)for low income patients which allows you to receive Xeljanz ABSOLUTELY FREE!!! They will mail you two forms for you and your doctor to fill out and once it it is verified that your income is low enough and your insurance denies coverage they will Fed Ex Xeljanz directly to your home for FREE! They send you a 30 day supply (two small pills a day) each month. What has really inspired me are the photos of another AU sufferer whose hair started growing back after a month on Xeljanz. She has been on it 6 months now and recently had her first haircut in 4 years. She is sporting a cute, short hairdo. Check her out at Pikore.com the alopeciaexperience instagram. I just started Xeljanz 3 weeks ago on July 28th and hope to be posting pictures of my hair regrowth soon to share with all of you! UPDATE: Saw light blonde, spiky hairs on September 1st after one month on drug! Went to doctor this week and now have dark terminal hairs, mixed with blonde, on my scalp and eyebrow and eyelash regrowth. UPDATE: 3 months, hair getting darker and longer, eyebrows growing in on both sides, a few eyelashes on my left upper lid. See pictures below. UPDATE: 4 months, started taking Biotin and upped doseage to 3 Xeljanz a day. Tons of new growth in resistant bald patches and scalp hair is longer and darker. Eyelashes emerging from both sides. I bought my first mascara in 6 years. Waiting for a few more lashes on right side to use it. Have lots of eyebrows on both sides. Go see my doctors this week on Thursday. They will be TOTALLY shocked and amazed at my progress since last appointment in September. Keep the faith everyone. Xeljanz works!!! UPDATE: Third Doctors' Visit: My doctor's are at the Dermatoligy Clinic at the University of California, San Francisco (UCSF) Boy were my they EXCITED about all my hair growth during the last 3 months! The last time they saw me I had tiny white spiky peach fuzz, with a few dark terminal hairs mixed in. This time I have long dark patches of hair almost an inch long, with regrowth of about 80 percent of my scalp! In between the dark patches, I have short spiky blonde regrowth in my former bald spots. That regrowth is barely visible on camera right now but the doctors saw it and ran their fingers over my entire scalp. Two sets of doctors, nurses and residents came into the room at separate times because everyone could not fit into the examining room at once. Plus I brought a friend with AU and his parents with me to meet the doctor's. Everyone was laughing, happy and amazed at my growth. Each set of doctors took pictures of my complete scalp, eyebrows and eyelashes. The doctors want the pictures for a future Grand Rounds or Dermatology Conference so they can present my case to other doctors and medical students at the University. I'm so happy that my regrowth on Xeljanz will be used to give hope to others! More details below about my friend with AU who came with me to see the Clinic and meet the doctors.
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Replies to This Discussion
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Permalink Reply by Jcortez05 on
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Yes I've been on a month and have a lot of those small white hairs I just need the pigment but it's def growing in which I'm super excited about.. I only just lost it 3-4 months ago after I underwent a traumatic labor and delivery ( csection ) to have my son
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Permalink Reply by Xeljanzmiracle on
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Congratulations!!! That's how it starts. I'm happy for you. You're a fast responder. Singh has growth too. Make sure you start taking pictures. You will want to document your regrowth.
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Thanks Singh, I pm'd you back.
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I just updated my discussion in the main section above. Everyone can read the exciting details of my Third Visit and doctors' happy reactions there. What I wanted to add is that the family I met from Turkey with a 32-year old, VERY SHY son, who lost all of his body hair 5 years ago, all came to UCSF with me to see the clinic and meet my doctors. It's SO GOOD that they came because instead of waiting for a referral from his primary provider in two weeks, THEY GAVE HIM AN APPOINTMENT FOR NEXT MONTH WITHOUT IT!!! As long as he gets the referral before his appointment, he's all set. This way he doesn't have to wait as long to see the doctors because it's hard to get in there. I had to wait 2 months for my first appointment after my referral. Five months in all. So it's great that he got in within a month! When I introduced him to my doctors I told them that he is going to be their SECOND Xeljanzmiracle, lol! What a happy day for my friend! In the meantime he is completing his paperwork so he can get his Xeljanz for free thru the Hardship Program. My main doctor said that my bubbly and happy personality from my regrowth and the joy of helping others is like "A ray of Alopecia Sunshine". What a compliment and blessing from God that ALL OF US can be used to help fellow sufferers of AA, AT or AU and give them hope. Its an honor.
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Permalink Reply by kevin on
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you too nothing is done at all on the dream still sell it for nothing everyone loses their hair at the bus stop or during treatment while a little modesty thank you
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???
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Thank you Nicolas.
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OK Everyone! Here's "My Little Fro that must continue to Grow, from Bare to There!" Six Months of complete regrowth on Xeljanz!!!
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awesome regrowth for 6 months!
keep up that great attitude.
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Thank you Return Life, appreciate the encouragement.
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