I was browsing thru some discussions and found so many parents trying everything under the sun to help their childrens hair regrow, with some positive improvement and some with no improvement. All of them so sad and heart broken over their kids hair loss. My question is why are SO many people focused on creams, injections, and ointments rather than helping their kids with self confidence, acceptance and pride. How can our children accept this card that has been dealt to them if we as parents are running around in despair trying to "fix" something that is not "fixable"? My daughter was diagnosed at 20 months old, and is now 3. She is COMPLETELY bald. Do people stare at us? Do they ask if she is sick? point? whisper? Sure they do, all the time. Does it bother me? OH YEAH! is there anything I can do about it? no, not really. My daughter is still young enough that she doesn't quite understand that she is different. She understands,to quote her, she "has a head, but no hair". I love my daughter more than anything in this world, and if I could have just one wish it would be for her to have hair, but that wasn't Gods plan for her and who am I to question that. We as parents set the stride for our children. They ride on our emotions. If my daughter saw me crying over the pain that she will have to endure, she would know and understand the extent of her being different. I DO NOT want that for her. She is smart and funny and everyone that meets her is amazed at how remarkable she is. I want to surround my little girl with positive people who view others from the inside out, not their surface appearance. I understand that the creams and ointments may give a tempory fix, but there is no lifetime guarentee. Also, I worry that if I was prying all of these "cures" on her that she may feel like there was something wrong with her. That, in turn, I think would send the message that she needed to be changed. Why would I put my baby thru that for nothing?? When Taryn is old enough to decide what she wants for herself, I will support that. Wigs, creams, ointments--- that will be her choice. For now tho, we take each day as it comes and hopefully as my daughter finds acceptance from others she will find acceptance for herself, without holding onto false hopes/hair.

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I think yours is the same approach my mother took when I was a young girl dealing with alopecia. I am forever grateful for their (my family's) acceptance. I never felt like there was something wrong with me that needed fixing. Of course they did all their research to make sure there was nothing they could do to cure me. The sooner parents can come to the infinitely difficult realization that there is no sure way to end this condition, the better off the children will be. It was always my choice once I was old enough what I wanted to do. Bandanas, hats, certain hairstyles, even now with my first wig at 33!! Without my family's amazing attitude that this was not the 'thing' that defines me, I don't know where I'd be at today! I wish more families would adopt your loving and practical thought processes! Bravo!
Thank You Seed! you give me confidence that I on the right path. Bravo to you! it sounds like you have a great attitude!
When we first suspected that Taryn had Alopecia, we took her to a local dermatologist who admitted he knew nothing about Alopecia. He prescribed a topical and an oral. Both steroids- which we DID NOT use. I couldn't bare the thought of putting my 20 month old on steroids--- just for hair! NO! He then sent us on to a Pediatric Dermotologist who WAS familar with the illness, and she said there was NO WAY that she would ever prescribe steroids for our child and that if we were one of those people that was going to try anything to have our child grow hair than we were with the wrong doctor. Thats when I knew I had the right doctor!!

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