DCP (Diphenylcyclopropenone)

Hello,
I am a 14 year old girl and have gained a lot of confidence from reading posts on AW. I have had aa for over six months. I have hardly any eyelashes, one and a half eyebrows and quite a few bald patches. And since it started it has got a lot worse. They first started me off with dermovate which I had to use every night, though it gave me bad spots and didnt really work ;( I was also given protopic ointment which i was told just to use on my eyebrow, after using it i now have half an eyebrow, its still not whole but its better than it was.
3 weeks ago I went back to the hospital and had 20 steroid injections which were really painful and have left scars and dips in my skin.I have to have them again in 6 weeks and they told me to stop using dermovate and use the protopic ointment all over instead but I am looking for a less painful solution to try.
I have also been offered DCP (Diphenylcyclopropenone) treatment which I would have to go to the hospital every week to have it applied, but I have heard that it can be itchy and leave blisters and redness!!
Has anyone had DCP treatment? and if so, have you had any results or just pain and blisters?? I know there is no cure for Alopecia but I feel that I need to try different treatments to prevent it form getting worse and so that I can say "well at least I tried".
Abigail :D

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Permalink Reply by Gloria S. on May 12, 2011 at 11:13pm
My daughter is using DNCB. It is the same idea as DCP but the way her doctor prescribes it, it is much more tolerable. My daughter had tried Squaric Acid and had the same consequences as the DCP and we had to stop using it after 6 months of torture.

She agreed to try DNCB from a doctor in LA who has us apply it DAILY with hardly any itching, and I mean hardly. The dosage is very minimal. She is thankful that it is this way and is continuing the treatment very happy. We just started this a month ago and already noticing slight growth.
Permalink Reply by Tam on June 8, 2011 at 9:51pm
Hi all,

I am on DPCP now and I too didn't have an initial reaction on the lowest does (0.001%). My doctor (derma) went very aggressive with me and put me on 0.01%. I reacted so horrifically I walked myself into the hospital ER. I was put on antibiotics, oxycodone and prednisone. The blistering was out of control... it was tearing my skin off of head. I decided to stay strong and keep at it even knowing that the side effects could be so horrific. I am back on the 0,001% and am now reacting the same way. I have the blisters, the burn, itch and sometimes pain. I do see fine peach fuzz on my head when I use my high-resolution mirror so that keeps me motivated. But it is truly insane I totally admit. I have AU and I lost my hair everywhere but I do have some patches of hair on my legs and arms... this disease is so weird! I think mine was fully triggered by stress so I also keep reminding myself that I need to stay stress-less in order for my hair to regrow...
Cheri Ann, keep me posted too on your treatment!
Permalink Reply by Cheri A on June 9, 2011 at 8:27am
I definitely will! I'm keeping my fingers crossed for all of us that this treatment works. There's got to be a viable alternative to DCP.

Cheri

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