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Permalink Reply by David S on July 15, 2014 at 10:27pm

Heard a little about it.  From what I heard though, he was not able to maintain the hair growth after the drug wa taken away.  I could be wrong, have not read anythign myself, just going by what I have heard.

Most treatments that can grow hair have not been able to maintain the growth.  

I hope they someday come up with something for those that do want their har back.

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Permalink Reply by bean701 on July 15, 2014 at 11:14pm

I think there can be a lot of optimism at first and then..same thing.  Thanks for the info David.  I have concerns too about the drug, I think some of those RA drugs are pretty harsh...

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Permalink Reply by AlopeciaDestroyedMyLife on July 16, 2014 at 7:14am

The male in question Kyle Rhodes is still taking the medicine and still has his hair.

You could be right that it may fall out again but nobody knows if this is the case yet.

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Permalink Reply by David S on July 16, 2014 at 8:38am

Very true. That's why I clarified that I was going on what I had heard and not read myself.

The thing I have seen in 40 plus years though is what I posted about treatments not sustaining growth after being stopped. I hope for his sake and a lot of others that this, or something soon, does the trick. Not for me...but there are a lot of people it would help.

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Permalink Reply by Rose on July 17, 2014 at 2:54am

I was excited to hear this news... for those who have not had AU for too long. It makes sense that treating another auto immune disease could help with another one (alopecia)  Thing is, for those of us who had alopecia universalis for many years, there is little chance of regrowth. Even if your immune system is no longer attacking your hair follicles, they are so damaged, there is no regrowth. At least that is my experience. I've had AU for 50 years.  I know my alopecia is in remission so to speak, but my hair regrowth is pathetic at best. But I was so hoping this drug would help others..

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Permalink Reply by AlopeciaDestroyedMyLife on July 17, 2014 at 3:02pm

Actually Rose , alopecia does not destroy the hair follicle there is no damage other than the hair follicle  relaying this distress signal to the immune system.  Once the distress signal is turned off your hair will regrow.

If this treatment proves to be the real deal, then there will be no exceptions however long the person has had AU for.

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Permalink Reply by Kim on July 17, 2014 at 4:01pm

Read about this too. Very interesting. I do hope this one successful case will encourage them to do more than one trial. I'm sure they won't have a problem finding volunteers here! Everyone.....keep sharing news and latest developments via this medium

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Permalink Reply by Kat on July 18, 2014 at 1:36am

I wish someone would communicate directly on this site about their daily research instead of making us feel like rabbits with a carrot being dangled in front of us. Why publish the article if you are not going to expedite trials, I say?

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Permalink Reply by Shasha on July 18, 2014 at 9:47am

Probably to find sponsors to fund the trials. We all know alopecia is nowhere near the top of the list for funding; we're too busy spending on little blue pills.

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Permalink Reply by Kat on July 19, 2014 at 9:08pm

Right?? ;) Well, I submitted my dna for national research in february and tho I am in the process of moving (next wknd), I intend to contact the researchers about this as soon as im settled in my new place.

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