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I'm a 17 year old girl and I originally was diagnosed with areata in January of 2015. It accelerated to totalis and I was bald but wore a wig until September of 2015, when I grew it out but still wore a wig. Now, in December of 2016, my hair is thin (with one big patch that has never grown back) and almost reaching my shoulders. I still wear a wig and am proud of how far I've come. But it is so easy to be proud of how far you've come when your hair is grown in. Today, I noticed a small bald patch on the back of my head. This one is new, and I'm genuinely freaking out. Im too afraid to tell my parents because it would worry them and make it real. I don't want to be bald again, I really don't. I'm going off to college next year, and I had hopes of ditching the wig for good, but looks like that won't be happening. This is extremely frustrating. Last time my hair fell out, I was depressed and had severe anxiety, but was too afraid to talk to a psychologist or my parents about how I was feeling. This time, I don't want to be miserable again. But I'm so scared. Advice? Please?
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Hello and my heart goes out to you. I am the mother of a daughter who lost all of her hair in her junior year at college, so I really feel for you.
First tell your parents. they need to know because they are your biggest support team on the planet. I was at a wig consultant years ago and they asked my daughter why she was so strong and coping so well so early in the disease and she said, and I quote, " My parents and friends are always so supportive", that is when I knew parents play a important part in your life. Talk to them.
Next, what made the difference for my daughter was having a wig that was exceptional. Before she lost her all of her hair she come home for xmas break and she had the best wig money could buy for her return to college. She shared with her close friends, but made it clear to me that if she did not make a big deal of this situation, they would not either. She is my hero.
Listen. people today wear hair extension, lashes, and draw on their brows. This is my advice to you. Go to Mac Makeup and share with one of their rep. what you have and they will show you how to apply your make and lashes and brows if necessary before you go off to school. This is what we did when my daughter lost her lashes and brows. They taught her how to do it right and not look faux and odd. We have to learn when from others, we are not professionals in this area and we need to ask others for help. I have to tell you after my daughter learned how to apply lashes and learned how to draw brows she said to me, and I quote, I feel like myself again. You need to feel like yourself again and you and your parents can make this happen. If you ever need advice or guidance from mer regarding wigs, cosmetics etc. I am here. You can friend me and I will be glad to help you. I am a phone support person from NAAF the organization for those with Alopecia.
I will end by saying my daughter is doing great, she has a great profession and a great boyfriend that loves her and friends that adore her, she is one amazing person and you can be too if you don't let this control your life.
Please read my story I wrote on AW regarding my trip to China. all my best lisa
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