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Pam, please see our group of ladies. 104 of us now, on this website in a group called 'frontal fibrosing alopecia', we are from many different countries; UK, USA, Canada, Germany, Portugal and Iceland. We are sharing our treatment options and experiences. If you post your question for our group you may well get some answers. My own treatment for my FFA is plaquenil... my derm also uses doxycycline and steriod injections he is also recently advising patients to try rogaine (regaine). good luck. XX
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