I'm 19 and live in the UK, and have been dealing with alopecia areata for a few years, but mainly I had small patches fall out which always grew back. However, about 2 years ago I got another patch which never grew back. Just over a year ago I got glandular fever and I was very ill - I've never really recovered from it, because ever since then I'm tired all the time and have no energy. Ever since this illness my hair loss became progressively worse.
I'm lucky that I have almost waist-long hair, which I easily sweep over my shoulder to hide my hair loss, and the majority of the loss is on one side of my head. However, I'm becoming sick of having to hold my hair in public whenever there is wind or even a tiny breeze, and constantly worrying that someone can see my scalp. Right now I've probably lost around a third of my hair, which is why it's a miracle that no one can see it. I have no hair running along my right ear, which goes upwards towards my parting. I probably only have an inch of hair below my parting in one area. The whole bald area as around the size of my hand. It then stretches to a bald patch at the bottom of the back of my head, with a fairly sizable (and strange) area of regrowth. I'm now devestated to find a patch of hair loss on the other side of my head.
Although if I am still you can't see my hairloss, I'm pretty sure that with the wind/ moving my head/ if my hair becomes slightly greasy, people are going to start to see it. Do I cut it all off or keep it? At the moment I don't feel that I want to go down the wig route, as I'm extremely attatched to my real hair (it is a beautiful and extremely unique colour). I was thinking of cutting it shorter and wearing a scarf around my head, but I'm worried about how people will react.
The reason that I'm thinking about changing it now is because I start uni in a month and I'd rather people get to know me with a scarf, rather than know me with all this hair, and then find it strange that I'm wearing a scarf if it gets any worse.
Sorry for the long story! I'd like to hear suggestions of how much hair people lost before they started doing something about it, and maybe some suggestions off people who wear scarves/headwraps, on how they cut their hair and how people react.
Thank you in advance :)