Is there ever gonna be a cure?

Just wondering if there is any research and studies being done to at least try to find a cure for alopecia or is this something scientists don't waste alot of their time with? I never really hear about any break throughs or anything even about alopecia. I feel very strongly that this is a serious condition, just because a disease is not life threatening doesn't mean it's not serious. My whole life has changed and the quality of my life is terrible.  I don't think I'll ever have my old self back...I used to be so happy and sociable and loved life. Now I don't understand life and I definitely don't enjoy it anymore. I just feel like I want it over with, I want to hurry up and be 80 yrs old so I rest peacefully. I don't think I'll ever except alopecia but I'm forced to live with because I have no choice. I'm perfectly healthy but for no known reason my hair falls out. I've lost all faith in doctors because they haven't really helped me with a diagnosis or even taken it seriously at all. It seems like to drs alopecia is a joke. I just have a hard time believing that there's no cure on the horizon. Scientists can clone another human being and put a man on the moon but can't find a cure for alopecia?!  I don't want to be prom queen or miss America but I would like to look like a normal human being. It just saddens me how complicated my once so simple life has become. Why don't drs take this a little more serious instead of dismissing us on every visit? Sorry I just needed to vent a little, just a little taken back by all of this. Does anybody know of any research that is being done?

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Permalink Reply by Tallgirl on July 28, 2011 at 5:44pm
Go look at your page. Click on View All on mine (not Read More) for older posts.
Permalink Reply by Kelly on July 28, 2011 at 5:59pm
Thank you...I will have to log on my computer because my cell phone won't let me click some of the links. Thanks again for the info! Sometimes I feel like I could become a derm with all the research I do all day long. I can't help it I just indulge in it because I don't understand so I try to make some sense of it all but always come to the same conclusion, there is no sense to alopecia.
Permalink Reply by Tallgirl on July 28, 2011 at 6:12pm
And...how many years did humans exist before a cure or immunization was found for polio, smallpox, measles, influenza, chicken pox....????????? You can't push the river of understanding and AHA! Discoveries just because you wish it for yourself. I know things are difficult when one looks different in a species, but THAT'S LIFE! We can't even come close to the extinction of the poor do-do bird!
Permalink Reply by Kelly on July 28, 2011 at 5:59pm
Thank you...I will have to log on my computer because my cell phone won't let me click some of the links. Thanks again for the info! Sometimes I feel like I could become a derm with all the research I do all day long. I can't help it I just indulge in it because I don't understand so I try to make some sense of it all but always come to the same conclusion, there is no sense to alopecia.
Permalink Reply by m on August 1, 2011 at 10:48pm
I can totally relate to how you feel. I have alopecia now, and had it on and off throughout my whole childhood. When I was little (maybe 5) I was often depressed and would ask my parents if they thought there would ever be a cure. They wanted to make me happy, so of course they said yes. I used to make them promise me there would be so that I could look forward to being a normal, happy adult. Now I'm 30, and there's still no cure. I think about all the stuff I missed out on throughout my childhood (sleepovers, camping, amusement park rides, swimming) and the things I still avoid because of fear, and it makes me really sad. I want to live a normal life, but all the stress of having alopecia has made me really tired.

I've probably been to 20+ dermatologists in my life thus far, and not a single one has been understanding or taken my questions seriously. My earliest memory of doctors is the pediatrician taking polariods of me and my bald head because she had never seen alopecia before. She also allowed all these medical students come in and look at me like I was some kind of freakshow. I'm pretty sure that's the root of my hatred of doctors. I currenty have about 25% of my hair, and no eyebrows or eyelashes. The most recent doctor I saw basically told me that I should learn to live with the hair have. I shoud grow it out and try to style it to hide the other 75% that's missing!?!? I was like, "UH exactly how do you think that's going to work???" No reply.

Also, it's sad to me that insurance providers don't do more to cover the cost of wigs for medical purposes.

Sigh.

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