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Permalink Reply by Anna on April 18, 2018 at 3:29pm

Hi there - I was prescribed topical tofacitinib by Dr. Brett King in Connecticut. I am Canadian - I travelled to go see him. He prescribed it to me for eyebrows and eyelashes - I am AU, but it's too expensive to use all over. At any rate, it didn't work at all for me.

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Permalink Reply by kimk on April 18, 2018 at 6:32pm

Don’t waste money try to get in clinical trial for ATI 502

or consider off label Olumiant, I have been told it is $1,000 a month in Germany!

3 commercial oral drugs exist -to grow hair in 50-75% of AA patients none approved for AA therefore “Off Label” use is needed:

2 Approved by FDA

Xeljanz-considered a pan jak 3-Tofacitinib
Jakafi- Jak 1/2 inhibitor - Ruxolitinib

1 Approved in Europe

Olumiant-Jak 1- Baricitinib - resubmitted to FDA for RA

Those individuals taking these drugs please share:
1. Is your health insurance drug plan covering, if so how much is the cost
2. If paying out of pocket how much are you paying and how do you obtain
3. How long have you been taking, have you started grown hair, stopped lost hair , started again etc.
Fyi
To the best of my knowledge:
there are 4 drugs in clinical trials:

these all seem very very promising! 

Aclaris Therapeutics-Ati 502-topical- Jak 1/3 selective-
Ati 501-Oral - Jak 1/3 selective-
Concert Parm - CTP-543-Oral- Deuterated Ruxolitinib- Granted Fast Track
Bristol Myers - Abatacept-?

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