desperatedanyell
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  • Toddington
  • United Kingdom
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desperatedanyell's Discussions

JAK inhibitors trial

Started this discussion. Last reply by kimk Apr 18, 2018. 2 Replies

HiHaven't been on here for a while as the UK trial was stopped due to lack of funding and so I was too upset to get back in touch.  Can you tell me if you are able to get topical JAK inhibitors in…Continue

Any luck with JAK inhibitors anyone?

Started this discussion. Last reply by Patricia Oct 31, 2016. 6 Replies

Hi.I am in the UK and my dermatologist has told me that JAK inhibitors have been very effective in the US.  He is going to put me forward for a trial in January.  I would like to know if any of you…Continue

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desperatedanyell's Page

Latest Activity

desperatedanyell replied to MannyJ's discussion Clinical trials
"Good question. I never seem to get any replies so thank you for noticing. I am really struggling here for some help as no treatment in the UK"
Jun 28
desperatedanyell replied to wfz's discussion vaccination and alopecia areata
"The flu vaccine definitely caused my horrendous attack 4 years ago. Just wish I had done my research first"
Mar 24
desperatedanyell replied to wfz's discussion vaccination and alopecia areata
"Hi I had the Pfizer vaccine 5 weeks ago. I am female aged 66 with AU I was promised 3 clinical trials over the last 4 years but they all got put on hold and then COVID came along and  so I am not on any medication. I haven’t had any side…"
Feb 17
desperatedanyell replied to wfz's discussion vaccination and alopecia areata
"I have no issues so far. My main concern is acquiring an additional autoimmune immune condition. I am currently 8 days in from the vaccine so my immune system hasn’t been given time to kick in properly yet so I’m keeping my fingers…"
Jan 25
desperatedanyell replied to wfz's discussion vaccination and alopecia areata
"Had it this morning, arm is aching and headache but that is all so far. Had a good chat to GP but, although they don’t expect any problems regarding autoimmune but they don’t really know as the trials were healthy adults. I will see how…"
Jan 17
desperatedanyell replied to wfz's discussion vaccination and alopecia areata
"I am having the vaccine tomorrow Sunday 17th January  I have done so much research and frankly have got nowhere with it.  I am concerned about the vaccine as I have AU but I am so anxious I will catch Covid so trying to weigh it all up is…"
Jan 16

Profile Information

Relationship Status:
Married
About Me:
I am 62 but have had Alopecia on and off since the age of 27. Lately it has taken a turn for the worse and fall out has accelerated
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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At 5:59am on October 4, 2018, Patrick said…

Hi

I found out that the Tofacitinib is available on the NHS to treat Arthritis so wondering if it’s available for Alopecia would you know?

I am from the UK also.

Patrick

 
 
 

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