I am new to this group.  A little info about me.  When I was 15 yrs. old I lost lots of hair on the nape of my neck.  This was 35 years ago and my mother just took me to our family doctor.  He didn't know what it was and I was devastated.  This was before internet, etc.  I had to cut my hair very short.  It all grew back on its own. At the age of 26 shortly after having my 2nd child I was diagnosed with RA.  It progressed and after several prescriptions I had to start on a biologic.  Enbrel had just come out on the market.  Throughout my 20's and 30's my hairdresser would occasionally tell me I had a bald spot on my head, but it was small and not noticeable and I didn't  think anything of it.  After Enbrel stopped working I advanced to Humira.  I had been on that until 2 years ago when I started Orencia.  Shortly after Orencia I noticed a large bald patch on the back of my head.  My hair dresser told me it looks like alopecia areata.  I had no idea what that was and then I looked it up on the internet.  I suddenly had an aha moment....this is what I had when I was 15.  

I was worried, so I talked to my rheumatologist who insisted it was Alopecia Areata and it was NOT caused from the Orencia.  I decided to see a dermatologist.  At this point I only had 1 spot.  She began to give me steriod injections and then I saw another spot.  I was so nervice that I then decided to get off the Orencia.  My hair had been thinning, but not that bad.  Meanwhile my RA was almost unbearable....so about a year later after talking with the Rheumatologist again, I decided to go back on the Orencia.  My hair slowly kept coming out and it was so subtle that I couldn't notice how much until it was very thin.  I then decided to get off the Orencia for good and I have been taking numerous supplements for both my hair and my arthritis.  My dermatologist pretty much told me there is nothing more she can do (after giving me several steroid shots and steroid cream).  I am devastated because my hair is so thin now and I still have at least 6 spots.  

Has anyone else been on Orencia and had AA happen to them?  I made an appointment to see a dermatologist and rheumatologist at the Mayo Clinic in Minnesota.  I am wondering if they will put me on Xeljanz.

Also, has anyone gotten AA as a teenager and then develop another autoimmune disease as an adult?

Has anyone heard of Dr. David Clark?  He had a utube video explaining a study that was done on Alopecia Areata and if you had it as a child, what other autoimmune disease you will develop throughout your life.  As for my story, it was right on...the study showed if you have AA from 10 yrs. to 19 yrs. then you will most likely develop RA and that was true for me.

Views: 356

Reply to This

Replies to This Discussion

Hi Suzie, 

Pretty new here too! I began losing my hair not long after starting Humira, although I had suffered from AA in my eyebrow and eyelash years before (just the one of each). It started thinning, and I noticed a few patches in February. It stayed the same for around two months and then started falling out very rapidly at the end of April. By May I'd lost all my hair.

I saw that video too, I suffer from Psoriasis and have for 22 years now and my mum suffers from Psoriasis, Psoriatic Arthritis and Crohn's disease - all auto immune conditions. My mum has taken Humira for years, with no issues and funny enough, even though I believe Humira triggered my hair loss, my psoriasis was the best its ever been on this medication. I decided to take a break from Biologics though in the mean time to see if this helps stimulate any new hair growth (I'm not convinced it will, but always worth a try!

I think its really interesting to see how so many people seem to suffer from a number of Auto Immune diseases - The human body is a crazy thing! I hope maybe sometime down the line more research will reveal more information about the link between these conditions.

Rachel_UK, thank you for the response.  I was on Humira for years and really didn't notice any hair loss. I am wondering just how Dr. Clark would treat the entire autoimmune diseases.  My husband is currently on Humira for Psoriatic Arthritis as well.  He said it is helping his psoriasis tremendously.  My appt with the Mayo Clinic is the end of August....can't wait to see what they have to say. 

Hi,

I had gone through plenty of treatments to cure my alopecia totalis problem. None of the treatments work. My friends introduced the natural products based on nutritional immunology.

Check out this website. This is how I recovered from 12 years of Alopecia. Read on the products for Rapsody & E-munity & Rosytime, SoyGreen.

https://www.eleadglobal.com (official website)

You may join as a member for FREE to find out more information through below link: https://www.eleadglobal.com/invite/register?promotionNo=MDAwMTEwNTQ...

Hope it works for you.  All the best!

RSS

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service