Suzie
  • Female
  • Frankfort, IL
  • United States
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Suzie's Discussions

Alopecia areata and rheumatoid arthritis

Started this discussion. Last reply by Suzie Oct 28, 2016. 1 Reply

Anyone else suffering from both auto immune diseases?  If so, I would like to hear your story.  Trying to find a common thread as to which disease started first for you.  And if the RA medicine…Continue

My 17 yr. experience with biologics

Started this discussion. Last reply by Suzie Aug 8, 2016. 3 Replies

I am new to this group.  A little info about me.  When I was 15 yrs. old I lost lots of hair on the nape of my neck.  This was 35 years ago and my mother just took me to our family doctor.  He didn't…Continue

Tags: Biologics

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Latest Activity

SabineTawni replied to Suzie's discussion Blog from HerAlopecia Forum - I found this blog very interesting.....
"Very interesting post!  The old mantra, "It's not medically necessary", from insurance companies comes into play once more.  Funny thing is, they cannot even define "medically necessary".  However, insurance…"
Aug 28, 2020
Cocopuffz17 replied to Suzie's discussion Blog from HerAlopecia Forum - I found this blog very interesting.....
"Great work!!! Amazing story of perseverance !!! "
Aug 26, 2020
Cocopuffz17 liked Suzie's discussion Blog from HerAlopecia Forum - I found this blog very interesting.....
Aug 26, 2020
Demixl replied to Suzie's discussion Blog from HerAlopecia Forum - I found this blog very interesting.....
"Very interesting blog, I like it very much! There are a lot of things to learn and to remember, because she gains a lot of experience and she is very strong. A very good example for all mothers and especially for the future mothers. I am also a…"
Aug 26, 2020
Suzie replied to Alo-mom's discussion How many out there would like to be given some worth while guidance if you are planning on wearing wigs?
"I belong to a site on facebook called Wig Studio 1 Wig and Topper Support Group.  This is an awesome site where we all post pics of our wigs/toppers and can ask lots of questions about them.  You should check it out.....they are a…"
Feb 20, 2020

Profile Information

Relationship Status:
Married
About Me:
I had alopecia Areata as a teenager and it cleared up itself. At the age of 26 I developed RA. Had small patches of hair loss throughout my life. I've been on Enbrel and Humira. After taking Orencia I had lots of hair loss and numerous hair loss patches. I have since gotten off Orencia and haven't seen any growth. So confused on what to take or not take. I've tried all kinds of supplements and injections. It's very depressing.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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