New alopecia treatment? Fumaraat

I just been to the dermatologist on Friday last week and they gave me an experimental drug: Fumaderm (pills) (active substance fumarate / fuamric acid).

I have alopecia aerata going universalis and I long lost the hope to recover, after trying various treatments (and I doubt that in this moment there's a treatment for a 100% and definite recovery). But I said to myself "let's give it another try".

So this is an psoriasis treatment, with a high rate of success apparently, which recently (???) they started experimenting it on alopecia patients. I asked them what is the rate of success of this treatment on alopecia patients but they told me that they didn't recorded it so far. However it appears that in Germany, I am from the Netherlands, where they tried this for a longer time, the rate of success is 7 out of 10, which it seems almost too good to be true. (see also this: http://www.ncbi.nlm.nih.gov/pubmed/16899425)

So did someone else heard of this or tried it?

Thanks for sharing.

C

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Replies to This Discussion

Permalink Reply by Louis on August 19, 2012 at 3:19pm

I've never heard of this but I'm new to the whole alopecia thing...I'm interested in how this works for you, please keep us updated! I'm currently seein great results from going gluten free and eliminating other inflammatory foods from my diet. Have you tried altering your diet?

Permalink Reply by JeffreySF on August 19, 2012 at 11:42pm

How much do I take and where do I get this?

Permalink Reply by Christine on August 20, 2012 at 1:06am

Jeff, I may be mistaken but I don't think it's available in the U.S. I wonder if its along the lines of remicade? I know that Remicade is suppose to suppress the immune system, wonder if it's the same or different med which does the same thing?? Lots of questions about this one. But sounds like it's working for some AA patients, glad to see progress.

Permalink Reply by Cristian on August 20, 2012 at 6:27am

I do not know if its available in America :( sorry. And I am not sure what remicade is but the active substance of this medicine is fumaric acid which has several forms.

Permalink Reply by JeffreySF on August 20, 2012 at 10:40am

I did a little research and came up with the following.
Fumaric acid is naturally produced when the skin is exposed to sunlight. Fumaric acid is available as a supplement on the internet but not sure about being from a reliable source. Currently being studied for use with Multiple Sclerosis.
Just a quick look so for.

Permalink Reply by Rose Marie' on August 21, 2012 at 3:29pm

This sounds really interesting.

Because AA goes into remission spontaneously it really does need to be understood if the drug is helping AA or whether it is a spontaneous remission.

I would hope that some sort of record is being kept to understand how this is working etc.

Good luck with everything.

Rosy

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