I posted this in one of the groups but I will post it here too
Hi I am new here. I will give some background. My brother was diagnosed when he was 10 with alopecia and it turned into AU. He has tried treatments but nothing ever worked. Fast forward 23 years and I noticed a spot in the back of my head. It slowly got bigger. I knew what it was but I was so afraid. Finally went to the derm. She wanted to do a biopsy but I figured why I knew what it was. Started with creams, and eventually started the injections, they were working great, and then all the new growth fell out. I am missing about 2-3 inches, probably more like 3-4" along the base of my neck. She finally did a biopsy last week and it is confirmed AA. Since then I noticed more spots, a larger one over one of my ears and a few smaller ones over the other ear. And a few around my temples now. From readi it seems like I have Ophiasis. I am scared. I watched my brother go through this and I know how scary it is. I have always had super thick hair and luckily it is enough to cover right now, but I am worried for how much longer. I love my dermatologist she is so sweet. I wanted to find someone who specialized in alopecia but really what can they do for me? I just started a ton of vitamins, I know it won't do much but feel like I am doing something. I was going to try going gluten free, but don't want to do too many changes at once. I am so depressed over this, and don't want my kids to see me sad. I am also worried will they get it.
I am a mess to say the least. I spent most of today crying. My husband is amazing and so supportive as is my mom who comes to every appointment and holds my hand.
I started taking a multi vitamin, B6, biotin, flaxseed oil, primrose oil. I also know my ferritin levels are way too low but I am worried about taking the iron. I SMS seeing a new md next week who is great with vitamins and will talk to her about how to get the levels up I know that one is important. I also went for a full blood work up on Friday too.
Thanks everyone, glad I finally decided to post. Today was just a bad day.