Alopecia World
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New here, first post
Hi, just joined today. I'm a little emotional at the moment.
37-year-old sahw . recently discovered all the "tricks" to hide my thinning and now bald spots no longer worked. Cried for 2 days...then passed to mad...now I'm at the oh well and ordered my first wig. Petrified confused sad angry trying to let go of what was and at the same time trying to find the positives in going bald. Utube can either help or scare the poo out of you...and I'm on the fence if I have the guts to one day shave my head completely . I'm a Christian married woman with a good sense of humor. In fact when my husband hugged me and said he was sorry....I replied with "oh well now I'll save on hair dye".
I also suffer from chronic severe migraines
PCOS
anxiety
depression
high blood press
insomnia
I can't have children, so I have fur/feathered kids instead.
I'm fighting to get on disability as I can no longer "hold" a job due to days missed because of the migraines.
I think my body is dyslexic. It thinks I'm 73 instead of 37
My eyes will no longer tolerate my contacts
My four front teeth are fake
I'm allergic to all makeup and can only get away with wearing it 2 times a week at most.
I'm fat
....aren't I a catch?
Luckily, I have a spouse who loves me for me and not my looks.
so...thats about it . this is me where i am at the moment.
Replies to This Discussion
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Permalink Reply by Alo-mom on
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After reading your post I will ask you if you could ask your doctor to test you for Sjogren'sdisease. I am not a doctor only a mother whose daughter had the dry eye and dry mouth while developing alopecia. As it turns out she did not have Sjogrens but you might want to get blood work for this autoimmune condition.
Bottom line when you do not feel well it is hard to deal with most anything. You need to see a Endocrineologist as soon as possible to see if you have something going on in your system. They can check blood and hormones and perhaps thyroid etc. Get to a doctor and let them do their thing. All the best. Lisa
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Permalink Reply by moonpie on
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Ive had all the blood test and hormone levels ect back when i still had health insurance. They also checked tyroid. The only thing that was off kilter is im borderline anemic. So im on iron and magnesium. I also take a sleu of vitamins. Its extremely hard for me to loose weight. I try to exercise but i also have asthma (forgot to list that) so i get out of breath just walking fast. My eating habits need work ill admit. I tend to eat one large meal a day which isnt good. I will emntion your suggestion my next trip to the dr. I truly do think "something" isnt right. Im always tired. I lack energy . and i find myself unable to sleep even when exhausted sometimes. Thank you for the response. I know my post was more of a pity party than a post lol
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Permalink Reply by Finley on
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Hi, I'm a lot like you, 39, married, Christian, and my husband is also a dear. He offered to grow his hair long then make it into a wig for me lol. As far as getting courage from Youtube, I like Jannica Olin and Abby Andrew.
Pros of going bald? Well some people may disagree but I like being a badass like the War boys in Mad Max. You can always see my pretty earrings when I'm Au natural. When wearing a wig every hair day is a good hair day. I have this chance to prove my character. People aren't as superficial as you'd think. The Alopecian community gives me strength. Beanies in winter are fun and I hope I'll be cooler in the summer. Maybe I'll get a cool head tattoo. My husband still loves me.
All the positives don't take away the negatives, losing my hair has sucked, but I'm not gonna let it destroy me. I'll embrace those positives.
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Thank you for the response...and the honesty. Ive calmed down a little bit since the "my tricks dont work anymore" discovery day. Ill get my wig tommorow im a little nervous about that. We went out tonight and i just put on a headband...yes i had my spots, but i figured if anyone was looking that closely then they have the issue. I like you am thinking at least my wig will always look good. And i look forward to the different possibilitys of what you can do. I will check out those utube suggestions and thanks for suggesting them. Overall i realise i could have alot worse things to be upset about. I have my hearing my sight and am able to walk. I have a home food and loved ones. So im loosing my hair...its hair. We dont have to have it. Yes it sucks and is embarassing and hurts the pride. But at the end of the day it truly changes nothing on the inside. So ...thats where i am today. Trying to be thankful for the good and shrug off the bad. Im looking into some cute scarves for when our east texas weather goes into competeing for hells temps lol! Again
Thank you for replying. Its good to know im not alone in this. I made a joke with my husband earlier that if i could just have the hair he has on his eyebrows ...lol . he replyed well im almost completely bald...one day me n you can match. Humor gets me through. Its cry or laugh...i choose laugh most days
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It's been about a month and I was wondering how you're doing, health-wise and emotionally. Have you gotten your wig yet and how do you feel about it?
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Hi. Thanks for the check in. As it turns out i cannot wear wigs. Several reasons. My head shape is so flat towards the back of my neck it constantly moves up towards the ceiling and i have to keep tugging it back down onto my head. Ive pinned taped glued ect...it just wont stay. Another reason...i have extremely sensitive skin and all of them (lf, cap,mono, etc) make me break out in hives.
So with that..i said to myself i will just do the best i can to look presentable and when it gets to where im more scalp than hair ill shave my head and learn to scarf/hat/pretty head wrap my head. Health wise im not too well. Currently having lower back spasms and possible kidney stone episode and i can honestly say id never wish this on anyone. I am however doing well in other areas so have to look at the positives right...right :)
Thank you for checking on me. I hope you are doing well!
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Also meant to add im teaching myself to crochet and im working on a beannie right now :)
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That's a great way to handle it. So sorry the wig isn't working out for you, if you do end up shaving your head which is totally up to you the wig might stay better, but I find I have to make adjustments when I do wear a wig too. I can't bear to wear it for more than a few hours anyway, I'm guessing I need to build a tolerance like breaking in new shoes.
I'm doing great, yesterday I went downtown for the first time with my buzzed hair and bald patches showing. Nobody stared or cared, I just chatted with my friends over coffee and they were all very caring and non-judgemental. I did that because I was ready, I just wanted to be comfortable with my friends.
So sorry about your back and other health issues. I know it really sucks not to be able to say "at least I have my health". I have seizures and the doctor is trying to figure it out, but my health is up and down and currently I'm doing pretty well. I hope yours gets better too.
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Im glad your doing well for the most part. So sorry about the sezuires. My aunt had epilepsy and could have anywhere from a grand mal that would move a recliner across the room to a absesnse sez where shed just stare into space. She was on many many medications. She was fairly down to maybe 2 a day by the time she passed (from unrelated issue). I hope your docs get you figured out and stable.
Mostly want to say good for you for steppimg out and just being "you". I know im a perfect stranger but im proud of you! Keep your chin up...and your picture is lovely. Your face is so cute "buz" cut looks very cute on you!
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