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Hi! My sweet daughter lost most of her a few days after her 1 year birthday. It was diffuse loss, no patching. About six weeks later, she lost her eye lashes and eye brows. She has since been seen by a Pediatric Dermatologist, who has suggested Olux-e for scalp, protopic or eyebrows, and Rogain foam. All this for 4-6 months. I am an RN, and have tried my best to educate myself as much as I can. Even so, the data out there is confusing at times. I did shave her head about 2 months ago, just because the few hairs that were hanging on for dear life were more of a hassle than anything. She does appear to have new growth on scalp, eyebrows, and eye lashes. All very light and thin.
I don't know that I have questions right now- or maybe there are too many, not sure! Any advice or encouragement is welcomed, of course.
I don't know that I have questions right now- or maybe there are too many, not sure! Any advice or encouragement is welcomed, of course.
Replies to This Discussion
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Permalink Reply by Yakynchenkova Natascha and Igor on
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hello, we live in Ukraine. My son 8 years, he has alopecia. We made the diagnosis and treatment of alopecia, but in vain.
very hard to look at his son who is losing hair and eyebrows. I cry and psychologically very difficult. society is not ready to take children without hair, unfortunately are not a competent medicine in treating alopecia. My heart cries. What to do and where to find help?
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Permalink Reply by brooke jared on
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thank susan-
her new growth came before the drugs, so who knows. We'll do this for a few months, and then hang it up. I agree with you 100% and feel like I am doing my best to mentally prepare for the long haul and lean more into ways I can be supportive of her and keep things as normal as possible. I suppose this is a fine line and one I will always be trying to humbly navigate. I had not heard of the sulphasalazine, but perhaps worth educating myself about.
thanks again, i am sure the questions will continue coming. So thankful to find folks with plenty of experience around here!
all the best,
brooke
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Permalink Reply by Connie - Chris' Mom on
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My son lost all of his hair and in trying to find out why discovered he had Ulcerative Colitis. He's been on heavy duty immuno-suppressants for about a year. Because of the scary long-term side effects his doctor is going to try switching him to a metabolite of Sulfasalazine, Pentasa, later this month. He has just, within the past month, had some patchy re-growth which we hope he keeps. Since AU is so unpredictable we don't know if his medication has had anything to do with the re-growth, just as we don't know what the new medication might do. Our main goal is to keep his insides as healthy as possible and if he's lucky enough to have a side effect of re-growing his hair we'll rejoice. I let everyone know if we see noticeable changes when he switches, as the Pentasa is supposed to be much safer (although a bit pricey!)
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Permalink Reply by Rose Marie' on
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Hello
I'm a mum like yourself and my daughter also has alopecia. She is a lot older than your wee petal but none the less I believe the feelings you may be having will be similar to my own journey with this condition.
The first thing I really want to say is that your daughter is just beautiful. Your piccies are gorgeous.
I will give you a little run down on my experience over the last 7 years. My daughter was diagnosed when she was 12 - she is now 19 years old. In the last 7 years she has regrown her hair 3 times and lost it four times. She has had AA, AT and AU over the last 7 years. We have never tried medications or treatments. Her regrowth was totally spontaneous with no medical intervention. She was not stressed or upset before she regrew her hair or when it fell out. It was something that was beyond her control. I would suggest that this is not an unusual occurence for children as there are many documented spontaneous remission stories - especially with children. I often wonder what I may have thought had I tried medication - and whether the remissions we have experienced be put down to the medication???? I suppose that is my worry with little people, but I fully understand it is your choice as to how you want to deal with your daughters alopecia and you would have my full support no matter which way you go. My only advise is that you investigate the possible ramifications of long term medications often prescribed for alopecia.
Some of the facts as they stand (even though there may be anecdotal evidence to disprove this) is that there is no cure for alopecia areata at this time. Medications prescribed have not changed in the last 40 years. I hope this doesn't make you feel like you have no hope. Because you do. Natural remission can and often does happen. So hang in there and do all your investigations to make you and your beautiful daughter happy with where you are.
If I can ever be of help feel free to pop in and say hi.
Rosy.
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