New to this

I've (apparently) been getting small bald patches since I was a little kid, although I think my mom may have been reluctant to tell me!!!

And I've been aware of my small circular bald patches since the age of about 16.

But I'm now 18 and in my final year of school,

And the AA at the side of my head has increased to a large rectangular shape which extends from a couple of inches above my right ear, back a few inches and a few inches under my ear (perhaps due to exam stress, but who knows!), also the back and left hand side of my head have areas of hair loss. I cannot wear my hair up anymore as it's extremely noticeable. Being quite a casual girl who has always worn her hair up this is quite annoying for me! Living in a regularly windy country like Ireland doesn't exactly help, as the wind often exposes it (and hats are just not my forté - I've not got a hat-fit head!)

I am not sure what will happen next... Whether my hair will fall out completely or grow back ?

I'm not really sure why I made this post, I guess I just wanted to talk about this maybe with other people who have felt this way (I have yet to meet another alopecia sufferer)...

Well that's it really, bit of a load off my chest!

hanks for reading

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Permalink Reply by SophieG on May 25, 2014 at 1:12am
Hey Liz! I also have AA and have had it about 8 years. during that time I managed to hide the patches and got quite crafty about it... Last September we had to put our dog down very suddenly and stress of that has caused a lot of my hair to fall out. I have a huge patch on the top of my head, on both sides and a lot of my hair has fallen out from the back of my head. I made the decision to get a wig as was crying a lot and was finding it terribly hard to cover the huge patches. My fiance has been amazing and actually shaved off my hair. I got an awesome wig and I can tell you for the first time in a long time I feel great and I look younger! I live in Wellington New Zealand and it is really windy here... This weekend we've had 140 km winds! Long story short I wish I got my wig a long time ago. I've gone through uv treatment, steroid shots, dermol lotion, steroids that cause allergic reactions on your head... The uv treatment actually gave me shingles! I feel like a totally different person. Because my wig is short people think I've just had a hair cut and the other day 3 people in one day said they loved the cut and colour. I'm looking forward forward to getting my next wig! Good luck with your hair :-)
Permalink Reply by mardy on May 25, 2014 at 2:26am

Hang in there hun.. you have a lot of support on here....my story is so similar to Sophie's it's crazy ...I know if you ever have any questions the people on here are awesome to help answer them..I've had AA  for 30+ years then the past 5 yrs turned into AU so all together I've been dealing with this for 35 yrs and it still never gets easier I just deal with it the best I can and enjoy life to the fullest...I was just telling my niece the other day I was thinking about getting my eyebrows and eyeliner tattooed on so I don't have to keep putting them on lol...and there's so many cute wigs to choose from that we can change our hair color often

Permalink Reply by GardenJess on May 25, 2014 at 2:29pm

I also had years of small bald patches, though I got into my 40s before the loss became severe. As you know, you can't really predict what will happen, but I think there is no reason to assume the worst. Your hair has grown back before, and it may again. I am sorry that you are dealing with this.

When my hair loss started getting problematic, I bought a bunch of hats. Maybe you could surprise yourself by finding a hat that looks good. Also, with summer arriving, hats are great for keeping the sun off. Wide headbands could also be an option.

You sound like you are handling this as well as anyone could, and I hope that you truly believe that you will be OK no matter what happens with your hair.

Permalink Reply by Liz on May 25, 2014 at 3:44pm
Really appreciate the support, it feels good to know that other people have felt this way. Thank you all for being so kind, I will definitely consider maybe looking for hats :) you've helped me realise that even if worst comes to worst it's not the most awful thing that could happen! Thank you so much

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