Replies to This Discussion

Permalink Reply by german mama in NY on November 12, 2009 at 10:27pm

Hallo Mary, thank you for your questions!!!!!!!!!!!!
Sabine

Permalink Reply by german mama in NY on November 12, 2009 at 10:23pm

Hallo, I'm a mother from a dauther ( 4 years old) with AA, my dauther has AA since she is 8 month old!!!
I'll do everything for my dauther!!!! BUT!!!!!!!! AA is a defect from the Immune system, so Gels, Crems>>>ect. how you can trick the Immune system with cremes or ect.????? AA comes and goes with or without help. I understand that you wanna try everything, but I believe, to learn to accept the situation and give yourself and your child confidence is the best gift what you can give.
And many, many people try to make money with other peoples hope and suffering!!!!!!!! If there is a treatment, why you do not hear about it, and I'm not talking about, yes the hair grows back, I'm talking about the hair grows back and do not fall out any more!!!!!!!!!!!!!!!! Greeting! Please, sorry for my english, I'm a german in NY!!!!! Sabine

Permalink Reply by Mary on November 13, 2009 at 1:39am

Thank you, Sabine - your English is WAY better than most of us can speak a language other than the one we grew up with!

There never were any answers to those last questions I posted. If the treatment is real, these would be easy to answer, I would think.

All the best to you and your daughter,
Mary

Permalink Reply by maren on November 13, 2009 at 12:00pm

Hi all,
im new to this forum.
Just wanted to share my experience with Dr. Gonen treatment. I talked to him,
he promised a 99.99% of success, I used his gel for 3 months on part of my scalp
(it smells of fennel and anise) but did not see a single new hair.

Maren

Permalink Reply by Mary on November 13, 2009 at 12:34pm

Thanks for sharing, Maren. This is exactly why I asked him the question earlier about how many patients have used his treatment WITHOUT success! The "successes" are all we hear about with any of these treatments, and we have no way of knowing the ACTUAL % of people who experience growth out of the TOTAL who pay all the money and try it. As we all know, AA results in spontaneous regrowth without any treatment.

Permalink Reply by maren on November 13, 2009 at 1:15pm

We should make a small statistics within the forum and then maybe
make our video on youtube as reply to his video!

Permalink Reply by Mary on February 7, 2011 at 10:45am

READ ALL COMMENTS to this discussion. As I said before, if this were real and MEDICALLY proven with blind testing, the news would be buzzing, and NAAF would have it showcased at the upcoming convention!

Mary

Permalink Reply by Karen Smith on February 7, 2011 at 8:46am

I do not think that this is an accepted treatment by the medical community. My daughter's dermatologist looked into it and felt it would do no good. Look at the NAAF sites for the researched treatments. We are so desperate that we will try anything.

Permalink Reply by Ken on February 23, 2011 at 8:45pm

I'll agree with the skepticism raised by others here and add that it's not very promising to see that Dr Gonen himself felt like commenting back in 2009, but then ignores more recent postings.

The questions asked by readers are also highly reasonable. I'd expect that Dr Gonen should be able to raffle off simple numbers, even just saying 50% or 80% of people see no benefit (if true) would give us hope that 20% of people see real results. With 20 years of success why not gather some stats to share?

***

I do want to use this thread to ask two questions which are related to things I read on his site and ask that the readers here comment on their own findings.

A. Dr Gonen writes "What is the hair loss mechanism? Here, again, there is a theory, according to which, the immune system attacks the hair roots. This theory is also not proven."

Since Alopcia still seems to be a diagnosis of exclusion, he may not be wrong. Do we have any actual proof that T cells are to blame? (also it's my understanding something, which we assume are T-cells, are not attacking the roots but rather they attack the proteins which normally tell the roots to grow hair - again, I'm still pretty new to the biology here so feel free to correct me if I'm mistaken).

B. More interesting to me is Dr. Gonen's statement which says "Hair Up strengthens the hair roots using herbal essences which positively affect the hair, by balancing the hair root environment, and returns them to life, but does not cause side effects."

I'm wondering is this concept has any validity and has it been explored by anyone? If I'm not mistaken he's saying that our current treatments basically use high powered steroids to coax the body into health but is it possible that the hair follicles are simply out of balance somehow and this 'balance' (whether it's PH or some other equilibrium the follicle is looking for) could perhaps be something worth looking into more deeply?

Like I said, I could be completely off base but that's why I like to open these ideas up for discussion and lead from what others may have thought about before me.

Permalink Reply by Pantigana on June 13, 2012 at 10:31am

If you have tried western medicine and it didn't work - you have nothing to lose!
Try all! it can't hurt you.

Permalink Reply by Mary on June 13, 2012 at 11:07am

As I posted over a year ago: READ ALL COMMENTS to this discussion. As I said before, if this were real and MEDICALLY proven with blind testing, the news would be buzzing, and NAAF would have it showcased at the upcoming convention!

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