New Treatment for alopecia that worked for me

Hey everyone! I've had alopecia for about 10 years and have tried every thing... literally everything. I've done laser, creams, injections, shampoos, but nothing really seemed to help me. My hair fell out almost like the seasons my dad always says. The spring and summer my hair always grew in and in the winter and fall alot of my hair fell out. So, I've been using squaric acid. The acid isn't FDA approved yet, but me and my dermotolgist said its worth a shot. So between 4-5 months mostly all of my hair came back completely. My hair was all back in the summer of last year. The acid is almost like a poison ivy reaction, it basically lies to the white blood cells and gets them to move away from the hair follicule and lets the hair grow. I had alopecia areata to begin with i wasnt completely bald. I was still able to cover my hair before the acid. My hair then began to fall out agian after the summer so im on the acid agian and my hair is growing back. I really recommened this treatment if you havent tried it. If you have any questions ... let me know! :)

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Permalink Reply by Starshine on May 21, 2013 at 4:46pm

Hi Sara. My dermatologist suggested this, but said I would have to go to another clinic to have it applied and she could not get it at her office due to the fact that it had to be kept at a very cold temperature. Do you keep it yourself and apply it yourself at home? I have ophiasis/diffuse loss and am currently on Methotrexate which has slowed down the loss, but I cannot seem to regrow the nape area. Also, if you stop using it, will your new growth fall out again?

Permalink Reply by Sara on May 21, 2013 at 5:10pm

What my doc did was she applied a much stronger version of it on my upper forearm.... then after 2 weeks I was going to use it about 5x a week. I keep the acid myself and have my mom apply it and I keep it at room temp as well. Using the acid all my hair grew in last summer and in Sept. it started falling out again I also stopped using it but was also under alot of stress so maybe both factors starting my hair falling out again.But from now on i apply it almost everywhere even if there arent any spots or if it itches anywhere. Good luck!!

Permalink Reply by Emily on July 4, 2013 at 5:04pm

Hi Sara,

Thank you so much for sharing this successful treatment news. I am so happy that you have found something that will help grow your hair back. That is fabulous.

Like you, I have had alopecia areata for about ten years, maybe longer. The patches have come and gone, but they are currently at their worst. I haven't done any treatments for about three years because I have either been pregnant or nursing (I have two babies under two).

In August, I am going to see my dermatologist to make a plan of action for when I stop nursing, which will probably be this October - 2013. My daughter, Annie Kathryn, will be eight months by then. Before having kids, I used Anthralin, and it worked, but the results weren't super amazing. For the past six months, I have used the IGrow Laser Helmet here at home for 25 minutes every other day. It might be working because I do have small regrowth, but it's not super duper hair if you know what I mean.

Sadly, right now my hair is falling out with fierceness. I hate taking my morning showers because I have to get that damn clump....it is horrible. You know exactly what I am talking about. It's crazy because the hair loss makes me anxious. And that is the last thing that my body needs, extra anxiety. I want to take an antidepressant to cool my emotions, but it's not all that safe with nursing either. Then there is a part of me that wonders if my body just produces more stress hormones in general, making the hair loss even worse. It is a tough thing to figure out. I know once I am done nursing I am also going to take something to blunt the emotions a bit. Have you ever considered taking something for anxiety?

I have read about squaric acid a lot on Alopecia World, and I have seen it in a few health magazines.

What is the difference between Squaric or Cyclopropenone or DNCB? Are they one in the same?

Do you know the percentage or dose that the pharmacy made for you? It seems like they come in different strengths. Is that right? Please tell me what you started with. And was it a private pharmacy or did you go to a chain like Rite Aid?

Thanks for sharing all of your research. I saw that you want to study dermatology. That's awesome. You have helped me a lot!! I think you should go for it, girl.

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