I was told in feb that I have AA. Since finding the patch in Feb, I have a 50p size patch just above my ear and it's starting to spread up my hair line to my middle parting. The strange thing is I still have hair in the patch, just very thin and very spaced out. I've been told not to brush my hair when wet, not to use my hair dryer, and not to use my straighteners. I was also advised to use alcapin shampoo which just dries my hair out. I've been given steriod cream and have been using for two months. The doctor said he won't refer me to a dermatologist as they don't like giving steriod injections anymore.
I just don't know what to do. Can anyone offer any help x
I was also was told in Feb that I have AA. I started with 2 spots, 1 was about dime size about midway up by my ear, and another spot right on the top of my head that one was peachy in color but the hair was thin, not bald. I went straight to the dermatologist and have been getting steroid injections every month (3 months total). I have several new spots, but the 2 older spots never went totally bald. Those 2 spots are very thin but still have hair, the spot by my ear has grown a lot bigger but still has hair in it just very thin.. My derm Dr told me to keep doing everything the same things that I have been doing not to change that way I care for my hair. I don’t know if that is the best advice, that is just want the told me. Although I don't think the injections are really doing anything maybe made it slow down some, but more spots just keeping coming. It is hard to deal with I always had very long and thick hair. I understand how you fell, at little lost on what you should or should not do.
Hope that helps you some.
hey another newbie here still awaiting an appt to even see derm to get full diagnosis - spend a lot of time in tears how do you guys cope? I am also someone with long hair but I am loosing my hair all over my body not just head I am so upset. What do we do eh xx
it's such a cruel thing isnt it, our hair is so much of us but it really is the what is going to happen. I guess you learn to accept it in the end or more used to it. Mine was told it was a mix of AGA and TE by the only doc seen but awaiting seeing my GP for a sensible ref as he did nothing other than glance at my scalp and said minoxidl off you go. As mines on top of my hair mines visible most when down so cope best in a loose up do. But mine comes out in my hands if I touch it all over my body getting to the point I do not want to brush or wash it as I get so upset when its coming out in great lumps. I am going to a leading hair place in London in a few weeks to see if I can get a better diagnosis while I wait for the NHS to even get me past the GP :-( sending hugs back. Where you from?
I was diagnosed in Jan. since then i lost all the hair all over my body. its very frustrating, i am just trying to cope with it all, but not sure what to do. the injections did not work, which we didnt think it would. not sure what to do at this point then to just wait it out and see what it does, since this disease is known to have a mind of its own.