Replies to This Discussion

Permalink Reply by Natalie on September 28, 2019 at 1:45pm

Hi Magmck

Thanks for the details I will make contact.

Regards

Natalie

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Permalink Reply by hellopeesha on September 12, 2019 at 6:25pm

Hey magmck and Natalie,

I'm sorry to hear that you're having trouble finding dermatologists willing to prescribe.

I found one in Dublin and am on Xeljanz for 7 weeks now, but that's all covered as I'm an Irish  resident/citizen, otherwise it'd be nearly 3000 EUR per month.

All I'd say to you is this - if I found one in Ireland, you'll totally find one in the UK.

Here's a few ideas:

- Ask your GP for a directory of dermatologists across the UK - I'm sure GPs have catalogues of specialists.

- Google around for UK dermatologists who specialise in alopecia. Contact each and every one of them.

- Google UK-based dermatologists who have worked on trials with Xeljanz. Because they've worked with it, the fear of prescribing it won't be as daunting, as they understand the drug, have seen its safety profile first hand, and might be more inclined to prescribe (as is the case with my derm, far as I can tell).

- Often this comes down to fear of being sued as the drug's currently unlicensed for alopecia. Maybe there's some sort of waiver that you could offer to sign, where the derm feels assured that you'll never sue them for any associated health risks/problems.

- Start a new thread and replicate the title of this one but change it to UK. That's how I found my derm - through very helpful and good people on here :)

I never thought I'd any hope of finding someone either. 7 weeks in and I'm feeling totally fine. Small bit of fatigue in mornings and waiting on first blood results since starting, and regrowth started this week. Keep up the search guys I promise that it'll pay off!

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Permalink Reply by magmck on September 13, 2019 at 2:52pm

Hi hellooecia. 

Thank you so much for taking the time to reply.  Hopefully Natalie has read my reply and as you can see. I’ve started taking xeljanz also ... just in the last few days.  It will be probably 4 months before I get the opportunity to meet De Singh and meantime I will need to have my blood monitored I think or my anxiety levels will go through the roof.   There is a good Facebook page xeljanz and alopecia and is encourage you to join if you haven’t already. Someone on the site is self medicating as I am and have me the details for the Dermatologist in London.   How exciting for you to have so regrowth so early on! What dose are you on ? 

 Have started taking 15 mg from beacon - 1 pill in the morning. And 2 at night.  I also have topical minoxidil which I have also started using in conjunction. 

Pleased for you that you are responding and no reason whatsoever that you won’t carry ont o full regrowth.  Best of luck !:-) 

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Permalink Reply by Kasia on November 23, 2019 at 8:55pm

Hi hellopeesha!

Would you be able to share doctor name who prescribed you Xeljanz in Dublin?

Thank you!

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Permalink Reply by hellopeesha on August 17, 2021 at 5:56pm

Hello Kasia - very sorry that I’m only seeing this now. Did you find what you were looking for? If not, the dermatologist you can contact is Dr.Caitriona Ryan at the Institute of Dermatology in Ballsbridge, Dublin. She’s fantastic!

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Permalink Reply by Kasia on December 8, 2021 at 6:07am

Yes, we managed to contact dr Catriona. thanks 

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