Thanks jerk for the photos of me bald and tagged so all my friends, coworkers. acquaintances can see. I wanted to tell them when I was ready not by being outed by you. I am completely mortified and need some moral support here. What now?

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Sorry to hear what happened....ahhh darn that facebook...ugggg! Well, please don't take this a wrong way but...what a douch..lol! I'm sorry he did that to you. I'm sure you are pretty upset, but look at it as a favor? Its out in the open and it will pass fast. Kind of like a band-aid, all at once. You can get it out of the way and get back to being you! You'll know who your true friends are! Okay here comes my cliche quote now... “Life can either be accepted or changed. If it is not accepted, it must be changed. If it cannot be changed, then it must be accepted.” Hope you feel better:)
As for your brother...I say have one of his most embarrassing baby pics displayed in your home for his next visit and let everyone have a nice chuckle...lol
Or on Facebook...tagged.
:)
Thanks Bella But at this moment I'm feeling like this is pretty unforgivable. I'm not sure he's going to be at my house again anytime soon. Also not sure how I'm going to deal with all the "so sorry you have cancer" comments. I just want to go hide under a rock.
Retaliate by putting ONLY very hot pix of yourself on your own Facebook profile, so anyone looking you up sees only what you want them to see.
Good idea! I may try this!
Why not post a note on fb titled "I don't have cancer..." ?! and give information about Alopecia, how / when you were diagnosed, facts about alopecia, some personal thoughts, and helpful websites like alopeciaworld.com and alopeciaawareness.com (by the way I am on alopeciaawareness.com :D ), and naaf.org. In short, use the note as an awareness tool. For anyone who knows you and really cares they will read this "note" and #1 know you don't have cancer #2 know what you have instead #3 bring awareness to a large community. Chances are you will be contacted by those frnds, fam, co workers, aquaintenances, etc..saying that they know someone who has Alopecia.
My first "coming out" moments were spent on fb. I have had so much positive feedback about the pics that I posted. Telling me how beautiful I am; telling me that they have a neice or friend or whatever that has it. All my posts were by choice, so I know that just betrayal from your sibling has to be so devastating, but outside of that, it can really become positive.
Yes he is a rat for doing that to you but a note on the positive side...it may help you to accept your condition more now than ever....some may not understand but I think you will find that now that they know...you will feel alot better about yourself and not have a "terrible" secret to hide...more people will be positive about it, than negitive. I am in the public eye alot and from a small town, so I am constantly answering questions about my condition, which I don't mind doing at all...heck I closed my shop for a week and people thought I was away for Chemo...little did they know I was in Jamaica lying on a beach and drinking cocktails...lol. Hope you get through it ok.... :)
Thanks Catherine for your support. When did you first come out and how did you get the courage to do it? How did you know you'd be ready for the day in and day out questions? I'm not there yet.
well I guess it was when I had to shave my head...I was very fortunate the my friends and family were very supportive.....one of my best friends is a hair dresser and it was coming to the point that I couldn't face going into the salon so she would come to my house...my close friends and co workers knew from the start. I had beautiful curly long hair and it wasn't as noticable so I went to headbands, scarves hats and finally shaved it off and now I wear funky scarves most of the time...and when I go to the city wigs. As far as the cancer questions...there is not a day that goes by that people ask me if I am going through treatments...especially if they are going through the same thing...I think of it as them needing support just as much as we do...now my friends get very protective of me and get upset about people asking. i just be honest with them. I still do not go bald in public...not enough courage for that yet but do around friends and loved ones. take care of yourself and u will be fine!!! :)
I go out with scarves and hats only sometimes when I know I won't run into anyone - especially when it's hot outside. I just am not ready for that all the time yet either. Thanks for your reply I appreciate it!

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