Research into Alopecia petition!

I don't know about you, but I get tired of insurance companies saying that alopecia is a cosmetic condition when in fact its an illness.  I've had alopecia for 10+ years now on and off and I've tried all of the treatments and so forth and nothing has worked for me.  When my hair did come back, it came back on it's own and then it left me again.  Also, I can't even tell you how much $$ I have spent on wigs over the 10+ year span.  My insurance company kept telling me that they will not reimburse the price for my wig because it's a cosmetic thing.  I argued and argued with them but they did not budge.  How is your hair falling out due to an autoimmune condition/illness a COSMETIC THING? For the life of me I could never comprehend it! 

Hugh Gallagher created a petition exactly for this and your signatures are greatly needed! Thank you!

Here is the link to the petition - https://www.change.org/p/the-nhs-research-in-to-alopecia?recruiter=...

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Thanks for posting this. I just finish signing hit. I think this is something we all need to sign.

I agree 100% and thanks for signing the petition DJ88 :)

Signed. I agree with you completely ! This debate needs to be held in the house of commons ! Why is the fact that rheumatoid arthritis and other AUTO disease need to be treated then alopecia is part of the auto immune disease family that still needs to be treated ! Alopecia means we are not healthy because our immune system is affecting us and can lead other immune attacks.

The reality is because the hair loss market makes them too much money ! It's sad really just shows how corrupt this works is !

A Tattoo is cosmetic because people choose it or choose to change/remove a tattoo. Alopecia isn't a choice.

If you go on the NAAf website they are signing a petition to change this rule about what's cosmetic so hopefully once that changed any treatment available will be made possible for us.

Sorry about the rant lol

Hi Singh -

Not a rant AT ALL :)  I agree with you on all points and I feel the same way!  You have brought up some awesome points btw!!

Yes, I saw the petition to change this rule on NAAF and I actually emailed the gentlemen within that petition to get the name and contact info for my local congressman so I can email them :) 

Here is the info if you are interested -

  • Congresswoman Ros-Lehtinen and Congresswoman Eshoo need their colleagues in the House to cosponsor this important legislation. The only way your Congressperson will consider supporting this effort is if one of their constituents officially asks them to do so. The more legislators that support and cosponsor this bill, the better the chance it has to be passed into law.
  • Please e-mail the Foundation’s Washington Representative, Joe Stewart, at stewart@hmcw.org and let him know that you would like to reach out to your Congressperson in this regard. Please include the zip code you live in in your e-mail as Joe will use this information to identify your Congressperson and their health legislation assistant.
  • Joe will provide you with the e-mail address for your Congressperson’s health legislative assistant (in addition to their name) and a brief message like the one below
  • Please be sure to cc Gary Sherwood at gary@naaf.org.

Thanks so much for signing the petition :)))

I will certainly email and even speak to someone on this board. Because I do fear as soon as a treatment gets approved or even a cure comes out for alopecia they will want to sell it is rather than legs us be treated through insurance companies or as we have in the uk the NHS.

I wouldn't be surprised Singh and that would be a dam shame!  I hope this won't be the case but like I said, I wouldn't be surprised if it is.  That's wonderful that you are reaching out to every avenue that you can.  Let me know if you find anything new and I'll do it myself as well :)

Take care!

Signed and sent!

You ROCK JeffreySF :)  Thanks!!

FYI News from www.naaf.org 
How H.R. 4989 Was Introduced — And How You Can Help to Pass It
On Tuesday, April 19, the Cranial Prosthetic Medicaid Coverage Enhancement Act was introduced to Congress, as bill H.R. 4989. We’re asking you to reach out to your congressional representatives and ask them cosponsor it.
It is almost unheard of for an insurer to provide coverage for cranial prosthetics to those with alopecia areata.  Coverage currently is mostly extended to individuals with hairloss secondary to chemotherapy.  It’s an inequity NAAF has long struggled to address. Presently, Medicaid programs in only a handful of states provide a cranial prosthetic benefit for individuals affected by alopecia areata. Where these benefits are available, they typically range from $300 to $400 dollars every year. The Medicaid program is structured to serve individuals with financial need, and when no other benefit exists, because purchasing a cranial prosthetic can become a significant burden (particularly for families with children).  

Anna-Eshoo-with-Wendy-Yu-and-Lori-Jacobi.jpg

After meeting with NAAF, Representative Jared Huffman (D-CA) and his staff agreed back in 2014 to author the Cranial Prosthetic Medicaid Coverage Enhancement Act.  The bill would extend coverage to anyone for whom a doctor deems a cranial prosthetic medically necessary.  This benefit would provide at least $400 every other year across all state Medicaid programs.
​Read more about how H.R. 4989 was introduced and how you can help ...

Thanks JeffreySF :) I'm on it!

Signed, sealed, delivered I'm yours!!! LOL

LOVE IT!!!!! :)  Made me laugh this morning!!  Thanks for that! I needed it!! Happy Friday!

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