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Pregnancy with alopecia
Hello! My husband and I are trying for a baby, and tonight a family member was quick to remind me that I have AA ( like I could forget??) and "wont that be terrible if you can't get your treatments while pregnant" and that I "might lose all the hair you have left once you deliver!"
Has anyone experienced a change in hair loss/gain while pregnant or after delivery? I had my 1st son before I was diagnosed, so this is new territory for me!
Thanks!
Gina
Replies to This Discussion
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Permalink Reply by Patchylatchy on
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I have the exact same worry..i have been diagnosed with AA before i got pregnant and i cant seem to enjoy my pregnancy at all..because all i can think about is what if i lost it all after delivery.
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Permalink Reply by maulis86 on
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everything I've read lately says most people keep their hair through pregnancy but lose it all after :( I am thinking of an Endo to see if they can help, since all I can do for it now is get the steroid injections and I know that wont be an option soon! I see my derm in a few days so I'm hoping to get some answers
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All stories I read seem to say that you will have nice hair during preganancy and areata hits hard after giving birth. However some women had first time episodes during pregnancy and not afterwards..other woman tend to lose hair 9+months after giving birth which makes me think that maybe it had nothing to do with giving birth and maybe its just coincidence..people often look for answers and pregnancy could be easily blamed..I also.noticed no other experience is like any other..so while I am here trying to generalize to feel better..I seem to have no answer whatsoever and I get more worried than feeling good..maybe after all we should let go and think less..
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Hi,
I am always interested when I see posts on pregnancy and Alopecia because I felt in my case they were related. I was diagnosed before ever getting pregnant (two small patches that grew back on their own) With my first pregnancy I experienced no hair loss whatsoever, both during pregnancy and post delivery. A few years later I had a miscarriage. A few months after that, I found out I was pregnant again and my hair stared falling out rapidly. By the time my son was born I had lost at least 80% of the hair on my head and about 60% of my body hair including total eyebrow and eyelash loss. I went to several doctors including a naturopathic doctor and they had no treatments for me. (Although I never tried an Endocrinologist so I'd be interested to know what they might say) One doctor thought maybe when I delivered, the hair would come back on its own, but so far it has not. (my son is 2 1/2 years old) I sometimes wonder if it was actually the miscarriage that triggered the Alopecia but both were out of my control.
I don't mean to worry you but just wanted to share my story. Even if getting pregnant with my son caused the hair loss, he is SO worth it.
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Thank you for sharing your experience with us. I was wondering at way age did you first see your first two small patches?
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I was 26.
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I will state some of my experience:
-had been to endocrinologist in the 1980's and 1990's. had all sorts of theories and bad remedies with only real remedy being oral steroids, which I never did because they are so bad for you
-my hair was alway great during both pregnancies with missing hair growing back, and also looking more like by pre-alopecia hair
-hair fell out about a year after birth...I was always a slow hair loser , so took about 6 moths for it all to be gone
-have had episodes over past 25+years of spontaneous regrowth with no treatment
-the immune system changes during pregnancy, hence the common experience of keeping one's hair, vs the AA autoimmune reaction of attacking your hair
-have read/been told that the longer you are without regrowth, the more likely it is you will not regrow
FINAL WORD TO THE YOUNGER WOMEN HERE (I am now 54 with two kids in college): having no hair gets easier. At this age, when I wear my Freedom wig, 9 times out of 10, I have the best looking hair in the room among my peers. This was also true a few years ago! The major downside for me is that I get very hot wearing a wig, but if this is my only problem in life, I will take it. Good luck to all!
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Thank you so much. I too think my immune system is weaker now. How old were you when you first had alopecia? Was it bad before getting pregnant? More peecisely I mean how long did you have areata before it became universalis?
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8, then 12 then not until 24. and then off and on until now. Body hair was not affected until I was in my 40's. The episodes at 8 and 12 were minor. Between ages 24-26 lost all but temple hair. I do not think my immune system is weaker, but my immune system thinks there should be no hair on my head/body lol. Lack of sleep and the stress/work of raising babies/young kids affected my immunity more than AA; but once the kids were bringing home fewer colds, etc, I too got better. Hair however has not. My theory is that there is a genetic component to this and that a stress event turns on the "gene" so to speak.
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I agree.From my reading I heard the earlier the onset for example childhood onset the highest probabilty of losing all the hair as opposed to just spots. I am just trying to be optimistic
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