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Progression of hair loss?
Im just curious to know anyones stories of how your alopecia progessed. How long did it take for full hair loss? How much would you lose? How often? And sensations felt when losing?
Replies to This Discussion
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Permalink Reply by Amanda on
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I lost almost all my hair in 3 weeks from the day I found the initial patch. It took about good few weeks for all my eyebrows to fall off and my upper lashes have a few left on. When the hair was falling off my head it hurt me a lot. I couldn't wash my hair because the hair that fell off would clump in a huge knot. The areas on my body where I'm losing hair itches before the hair actually falls off. At first I thought it was my eczema acting up but realized the spots that itched are bald.
Have you just been diagnosed?
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Yes im 15 and in grade 10, its kinda hard, but mine does not seem as harsh as yours. Sorry :(. i was diagnosed about 2 months ago started with a gold ball sized patch at the back of my head, i still have alot of hair, you can barely notice any patch, but since then more little patches have appeared and i lose hair easily. if i were to run my fingers through my hair and tug about 4 would come out. do you think the future looks promising for me? :)
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also my head does itch occasionally and i get this tickle feeling. not really a burning like most describe it but if someone were to tickle your scalp with a feather. this could possibly be the hair on my head touching the bald spot lol. but i have noticed these tender, sore, bumps on my head??
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Oh, the ticklish feeling. It could be your hair touching the bald spot. It was like that for me. I had small bumps too but that's more from a reaction from the treatment.
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I wish there was a definitive answer for you. Alopecia is so unpredictable and is different for each individual. I remember freaking out that I could actually see and touch my scalp. I still have my moments. It sounds like it may still be falling....try not to tug your hair :P If it were meant to fall off let it fall naturally.
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yeah it falls all over but not clumps. im seeing the derm in 10 days to get my monthly rounds of shots of cortisone. they have helped. the patches dont grow except the formation of new ones and i notice some regrowth. lol im only 15 and i have to deal with this... do you think mine will go totalis? i know its unpredictable but based on the little you know about me do YOU think it will progress?
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And this will make you such a strong person! I remember people who knew me with hair seeing me wearing hats and no hair having quizzical looks on their faces. I would stare at the floor or avoid them altogether. That's good you're having a positive reaction to the shots. You never know. For me, I monitored the hair loss and that's how I judged that I would pretty much lose all my hair. I know I haven't really answered your question but there really isn't an answer :(
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lol okay ima keep my head high up. the thing is, alopecia universalis is so rare. about 1% of areata sufferers progress to it and yet so many people on AW have it. thats what kind of troubles me...:|
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That's the spirit!! And if you ever need to talk, I'm here! I think those with really severe cases are the ones sometimes to share their stories. If it's a patch or two and I could of hid it, I may not be as open as I am now. It is rare, yet more common than I every thought as well.
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