Alopecia World
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Scared and confused!
The past 5-6 months have been hell for me. In August I started to notice a lot of hair shedding. Now, my hair is very thin all over my head.(no patches) Last week I noticed my eyelashes and eyebrows are falling out too. This is terrible and I'm so scared. No doctor can tell me whats going on. I had blood work done and it all came back normal. I went to the Dermatologist and got a scalp biopsy and the biopsy said that there was inflammation on the scalp.(which could be because I have dry scalp in the winter idk) I got scared and asked if it was scarring alopecia and the doc said biopsy didn't show any scarring. I know it's just hair not anything life threatening but I'm scared my family will disown me or other people wont except me.Losing hair was hard enough but no I'm loosing brows and lashes. I just keep asking my self "why me"? If anyone has any type of advice or suggestions I'll gladly take it. Could this be some kind of thyroid problem or vitamin decency? I got tested for thyroid before but maybe they didn't catch it in the test they did. Sorry I'm rambling I'm scared
Replies to This Discussion
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Permalink Reply by Karen Smith on
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I am so sorry this is such a dificult thing. My daughter lost all of her hair in a short period of time when she was 18. We got her into a good wig quickly. She has since had her eyebrows tattooed and uses false eyelashes. It is a big adjustment but she is doing great. I will be happy to help anyway I can. We tried steroids at first with her which did not work. We then tried sulfasalazine with some hairgrowth but she developed an allergic reaction. She does not want to seek treatment right now because she is tired of Drs. There is a genetic link but no real cure at the moment. The NAAF site is a good source. Don't fall for ads on the internet or you will waste alot of money. Add me as a friend and I will send you a link to the wig site that I use. It is the cheapest that I have found. You will survive this but it is a tough loss.My daughter is a happy well-adjusted college student living away, dating, partying and having a really great time. Noone knows about the alopecia unless someone tells them. I hope that your family will be supportive but if they are not you will find friends here. Let me know how I can help. Karen
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Permalink Reply by cally on
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Hi, I really feel for you. I was diagnosed with aa in 04. The first time it was very textbook . One very large round patch with no hair. It happened in what seemed like over night. This time around it has been confusing . I got two small patches in the back and now all the hair on my left side is thinning. It's awful and it seems to all happen so fast. My hair is almost "fuzzy" feeling , it breaks easy and just "feels" different. I'm so so sorry for what you are going through. From my experience I use a product called derm match. It really helps camo the thinning. I hope this helps. We are all here for you. This is a great site for support. Please dOnt feel alone!
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Permalink Reply by Jared on
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Your family will always accept you!! I recently noticed a small patch starting on my eyebrows. I feel you on that one. Losing your eyebrows isnt an east thing to deal with. I have patches all over my body now so it's possible it could be universials or whatever. The one that takes ALL your body hair. You never know tho i still have quite a thick head of hair on my head. Stay strong! I will too :) New year, New experiances! I wish you the best!
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Permalink Reply by alamogirl/ aka Judy on
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Alina: My AA began at the exact same time as yours and I totally understand your fears. First, please trust the ones who love you. They will not stop b/c you are losing your hair. I know I feel less lovable w/o my hair, but I realize this is an emotional response to a devastating condition. All the support room posts have taught me that nearly everyone has a different course but with time and love you will be OK. In the meantime, read (but not too much at first), tell at least one good friend, investigate wigs (I love mine and so wish I did not need it). I bought 3 cute caps to wear when the wig is not needed. As for your very understandable question, "Why me?", you can also ask, "Why not me?". I am a type 1, insulin dependent diabetic, I have autoimmune hepatitis (both controlled) so I felt like AA was really piling on. But I am a devout Christian, which pulls me through ANYTHING. So I will pray you find strength and acceptance on this icky journey we find ourselves. You will come out on the other side OK.
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Permalink Reply by Alina07 on
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Thank you Judy for those kind words. I will staying strong. I know god doesn't gives us more than we can handle
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Alina my name is tyeler and ive had alopecia areata for nine months now. Its soo hard and i understand exactly how you fill, im filling the same way. The mother of my child recently told me that because of my alopecia her feelins for me are starting to fade! So life has been kind to me either but the best thing to do is find some type of support group with people that u can meet with and jus share concerns and help eachother with the anxiety and fears that u fill
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That's horrible Tyeler. I can only imagine how hurt you are, but look at it this way you saw her true colors. That's not true love and one day you'll find someone who love you for you.
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Thanks , but i hope u find an outlet that makes u feel better
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Hi, my name is Hailey and i was diagnosed in 6th grade with alopecia, thankfully it was just on my head and jsut spots, but it was very hard. but my family helped me through it and my real friend stayed with me. im so sorry this is happeneing! the world can be very cruel to us. people can be cruel too. becuase i was in middle school the kids were mean and i was made fun of alot but i got through it. all my hair grew back and now i found another spot. i am scared also and i feel for you. i know how you feel. its probally one of the scariest feelings you can have. even though it is not life threatning it sometimes feel that way. but you need to count your blesings and focus on the good things, like the fact you have your health, and your family and/or friends. if you need anything im here. in a world where beauty is a standard most poeple can't reach you need someone there to tell you you're beuatiful not matter what you look like. it whats on the inside that counts. i know i dont know you but your beautiful and you can do this!
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Permalink Reply by Rebecca on
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Hi Alina, this website is a great place for support and information. I have had alopecia since childhood and three years ago my alopecia went from AA to AU; it was a very upsetting period in my life. I had a great support network of family and friends but also found Alopecia World to be a great place to go when I felt no one else could relate to what I was going through. If you feel that you are at the stage where you want a wig I found a great salon just outside of Philly (I cried the entire time during my first consultation and the women there were so comforting); they have an entire floor of the salon dedicated to the wigs so you're not in public view and the women there are very helpful. When I was loosing all the hair on the head I took some photos of my eyebrows in case they fell out to. Well they did and the photos where great to have when I had my eyebrows tattooed. Add me as a friend so I can send you information on the salons I went to and if you ever need someone to talk to that lives close by feel free to contact me.
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