Replies to This Discussion

Permalink Reply by PaulJ on October 17, 2011 at 9:47pm

Its a pain and its unpredictable which causes even more damage as it makes people worry.

But it cant stop you doing anything :)

• ▶ Reply

Permalink Reply by Ryan on October 17, 2011 at 10:39pm

Yeah man i know,
makes things awkward soical wise tho ...
had plans to take a girl out and iknow people say (its not about looks its whats inside)
TRUE
but in this case we'v hardly talked so i feel like im false advertising if my hair doesnt grow back and gets worse ... its hard to say,
the patch on my head was completly bald and then started growin with no treatment about 2 weeks later then fell back out another week later hahaha WAT THE HELL is going on :/
unsure how people keep so strong about this it breaks me down and de motivates me like crazy,
SAD THING IS
i can easly make it not noticable an no one knows whats going on other then famley and close friends my great fear is whats to come an thats what gets me haha
but yeah cant do much about it i guess,
good place alopecia world sometimes you need to hear other storys from people feeling the same.. alot of strong people here

• ▶ Reply

Permalink Reply by PaulJ on October 17, 2011 at 11:40pm

Don't be too hard on yourself - when people get AA they go through a wide range of emotions, its almost like grieving. Anyone with it will tell you some days are good, some days are bad - just always remember that there are people that will listen to you here :)

Socially it can be difficult as we fear others peoples reactions, just like any other thing in the world that makes others "different", in the end I simply stopped caring what others thought :).

• ▶ Reply

Permalink Reply by Ryan on October 18, 2011 at 1:28am

yeah haha cheerz man

• ▶ Reply

Permalink Reply by Bruce on November 5, 2011 at 4:07pm

I got jolted out of denial this week. For several years now I have dealt with the increasing bald patches on my body by shaving increasingly larger areas below the neck, eventually escalating my efforts as I embraced being what my naturist friends call "a smoothie". At this point I don't actually know how much of my body has lost hair from Alopecia. This was all well and good until I found a bald patch on my scalp this week--first time ever. It's now almost the size of a quarter and I think one is starting in my beard. This is a very different proposition. Fifteen years ago (pre-alopecia) I shaved my head for a while and enjoyed the feeling. But that was elective--I was in control.

Intellectually I know that I can be okay with shaving my head and that a good portion of my resistance is laziness! LOL But I do have some feelings come up of being out of control and having yet another condition to have to explain. I didn't even tell my best friend when I started getting bald patches on my body. I was a pretty hairy guy and I have been fairly open with close friends about "manscaping", but told relatively few people I was actually having hair fall out. Frankly, I've gotten tired of explaining my ADD, Asperger's and leg amputation over the years. Now I'm facing the idea of adding alopecia to the mix.

It's a bit of a roller coaster. So I try to remember the words on the cover of The Hitchiker's Guide to the Galaxy: "Don't Panic".

• ▶ Reply

Permalink Reply by tim kay on January 23, 2012 at 4:36am

Ryan, don't let the alopecia get you too depressed! Try not to think about it too much, it's like a riddle wrapped inside a puzzle, and doctors can't solve it! Don't let it control your life either. Go ask that girl out, travel to the places you want, play the sports or other activities you want! Yes you might lose hair, but your youth does not last forever either. Dont over think it, carpe diem - Tim

• ▶ Reply