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Have you all seen this article yet? http://www.doctorslounge.com/index.php/news/pb/62273
My derm mentioned sunscreen as a possible trigger during our first visit but she wasn't committed to the idea. Anyone else have a doc mention this as a possible link?
Of course, my first reaction was to throw out my sunscreen but I don't even know if:
1) This has been proven?
2) Would it even make a difference?
I would love to hear your thoughts.
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I won't be using the products anymore. I actually have been getting away from using such products lately. I don't think that is the only factor in FFA and LLP or we would see a lot more women with the condition. I think, as I have said before, that it takes the perfect storm that comes together for many of us with sensitivities for the condition to occur. I am more careful about the chemicals I use on my skin and hair.
This research opened my eyes to the impact all products may have on FFA and other diseases. I have been using an eye cream and a skin conditioner with SPF daily, every day, for decades. Because it is a product developed by a doctor, I assumed it was safe. It protected my skin and I loved it. I have recently been diagnosed with FFA, but hair loss, first on my legs, began many years ago. I've lost my eyebrows and significant hair loss at my temples.I have stopped using my SPF creams and am looking for alternative sunscreens without the chemicals used as sunscreens in my former product. I also have a history of rosacea and fit the FFA profile as described in this study.
As a result of this article I discovered a wonderful research/advocacy organization that reveals the safety level of all ingredients and rates tens of thousands of products. They have an app that can go on your iPhone that enables you to scan the bar code of products before you purchase them. They have done remarkable research on beauty products, cleaning products, food, etc. Check it out here, Environmental Working Group: ewg.org.
Here is the Skin Deep Cosmetic Database. http://www.ewg.org/skindeep/
My trusted skincare product rated a 6 with 8 being the worst and 1 being the safest. I am moving to all products rated 1 or 2. This database provides the information needed to make product selections.
Many thanks for the heads-up on this research.
This is fantastic! Thanks for sharing this great resource.
Mel, glad this is helpful to you. This has become my favorite app. This site is helpful in all the areas you mentioned and I am going to do all that you suggested.
interesting. More than half the products I use are cruelty free, natural without toxins, but there are a few that do not fit that category so I sincerely hope it's not one of those!! How could we know?!! :(
since this was posted I have learned a great deal of new things about toxins in relation to FFA. What's probably important to keep in mind is that everything about FFA is based on genetic markers. i million people could use the same product and be exposed to the same chemicals and ingredients but only people with genetic markers that respond negatively to those ingredients will acquire FFA or any other such disease. If I understand correctly the disease is aggravated by bio psycho social factors that evoke stress. So, it's useless to compare the inflammation based auto immune disease we are suffering to people who do not have these markers. We have to just keep exploring and talking and asking questions to continually learn more.
Has anyone seen this article just published in March 2016?
Frontal fibrosing alopecia: possible association with leave-on facial skin care products and sunscreens; a questionnaire study.
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