Replies to This Discussion

Permalink Reply by Christine on March 13, 2013 at 1:09am

You have the right to tell anyone or no one. I lost my hair not totally over a period of ten years so I had lots of time with it, I now have almost no hair on my head except a few small patches that are dark normal hair the rest is either those white hairs that don't really count or bald. Because of my pattern of hair loss (all underneath) I was able to get by with my bio hair for many years, during that time I did openly tell people that I had AA, most couldn't tell as I was very good at styling around it and covered pretty well. When I began to lose sections in my upper hair I knew it was just a matter of time. For me I told most people I know on a friendship or work/friend basis, because I work in a hospital it was a bit easier for me, I just couldn't show up one day with a wig and no one notice, so I thought it made sense to tell people, I got a really good hair piece and people tell me that it's incredible I even get compliments on my hair from time to time from people who don't have a clue, at first I thought I needed to tell them It was a wig, but not now, I just thank them. It is such a personal thing and I feel that whatever you chose as best for you is the right answer, no one can decide that for you, sometimes I wish less people knew, but my case was a bit different, as I told just those who would have known anyways. Tell me what was your boyfriends reaction? If it were not positive that my be what is making you feel like you would rather others do not know. You must have a great wig and that is wonderful, and gives you much confidence. In the end it is a personal thing and it is yours to reveal only if this helps "you"

• ▶ Reply

Permalink Reply by Lawgirl88 on March 13, 2013 at 6:55pm

Actually my boyfriends response was great.... He said he already knew and didn't care. It was his mother who was the problem. She refused to believe it was a medical condition and said I was crazy and pulled my own hair out. She also said all my children would be bald. In the end it was her that split us up because she was so hateful towards me. But that's a whole other story.

I guess I am so scared to tell people because when it first happened (all my hair fell out fast. In a couple days time from start to finish) this girl I knew who didnt like me figured it out real fast and posted a blog about how gross I was for being bald. It traumatized me, especially so soon after it all happening to me. I haven't told anyone about it since, because I don't want people using it as a way to hurt me.

• ▶ Reply

Permalink Reply by Lawgirl88 on March 13, 2013 at 6:57pm

Good idea having your sister tell them. That might be an idea I use In the future.

• ▶ Reply

Permalink Reply by michelle on March 13, 2013 at 4:34pm

I think there is a big difference between keeping alopecia a 'secret' and keeping it 'private'. Keeping alopecia private is like anything else....choosing what you want to share. There is control in this. When you keep alopecia a secret...it becomes something you want to hide....shame is attached to secrets.

For me fairly new to AU....starting losing my hair 2 years ago and as of this past November I have no hair on my body. Now I'm not at a comfort level letting my bald self out there....wear caps and scarves....I have decided that this is a part of me and i have NOTHING to be ashamed of. Interesting, I shared my AU on Facebook for the first time last night...so much support. Now remember this was my choice...when and who to share it with...

• ▶ Reply

Permalink Reply by Lawgirl88 on March 13, 2013 at 6:56pm

Thanks... I do need to think of it as private and not a secret. I do feel shame, and I should think about it as no ones business, instead of something shameful to hide.

I'm glad everyone is so supportive of you. I hope I will get the same reaction if I ever take the leap :)

• ▶ Reply

Permalink Reply by George Ortiz on March 16, 2013 at 10:01am

Hello every one, there is very promising news on the horizon in the microbiology world concerning Lform and biofilm form bacterial overgrowth within the human body and its direct correlation to inflamitory autoimunual diseases of all types. The studies show unmistaken connections between inflamitory diseases in the human body and internal biofilm bacteria that resides within the body gone undetected by current testing. Biofilm and Lform bacteria are the cause of all autoimmunal diseases the articles posted below show this. If interested please read the articles, personally I owe it to myself to read up on this current break through information. we are all victims of this current situation. If you wish to read the article just go to www.bacteriality.com and read Dr. Randalls discoveries on biofilm bacteria.
and also check out the Marshall protocol websites google Dr.Trevor Marshall or google the marshall protocol. I hope this information consoles every one who reads it in some way.
If you believe in this movement please let the word out contact your primary care physicians and inform them of this breakthrough information give them the websites so they can read the published articles and read about the current conferences and currently ongoing human trials in effect.

• ▶ Reply

Permalink Reply by kathie on March 20, 2013 at 7:36pm

I say YES!!!! I have had AU for one year. I have never really hid it from anyone and it is so freeing. It may be hard at first but you will find people will accept you for who you are and if they don't you don't need them. I know it sounds cliche but it's true. In actual fact, I have gotten hit on with my bald head more in the last year than in the last 5 years with hair. It's all about rocken it. You are, we all are, more than our stupid hair. If your worried about your look, work out. A great body with a shiny dome is cool!

• ▶ Reply

Permalink Reply by Jen Barry on March 21, 2013 at 9:35pm

Well if you are really good at hiding it...then it sounds like you just want to blend in with society...and there is nothing wrong with that in my opinion. I'm not sure why you feel the need to "tell" your friends...unless you feel that you need to "talk" about your feelings with somebody. Honestly...they probably already do know or suspect. And if they do "know"...obviously it doesn't matter to them. And if they don't...so what...it's not like you are lying to them...there are just some things in life that are not other people's business. Forgive my anology...but if one of your friends had a big fat scar on their butt...and kept hiding it and keeping it a secret...would you treat them differently if you found out "their dirty little secret"?

• ▶ Reply

Permalink Reply by Jessica Hoschouer on March 21, 2013 at 10:17pm

I told my entire first grade class when I was six I have only been teased about a feew times. I think you should tell your really close friends ask them to keep the secret. If they tell then they are not really your friends.

• ▶ Reply

Permalink Reply by sierra harris on March 23, 2013 at 11:38pm

My opion is that u shouldnt hide it anymore yes it will be very hard at first i told my whole school an i wear a hat to school so every one knows yes it will be hard at first but it will get better i promise

• ▶ Reply

Permalink Reply by stephani on March 31, 2013 at 7:20pm

Well I think the first step is not telling others but is learning to accept yourself and from there you can move on to tell others that your friends with about it. They might know but then again they might not. You need to first work on your denial issues, before you can tell others if that is what you want to do.

• ▶ Reply