Alopecia World
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Thank God this battle is WON!
YAY!! I finally did it with the Help of Jesus!! Not by might... I have given up the wigs.
I went to work without a wig, and guess what!!! I feel freeeee!!! I got the stares and the wows.
Even one guy who saw me last week with my wig asked, "What kind of treatment are you having?" I said "HUH? Oh I don't have cancer, I have alopecia" … he was very puzzled.
What else could I say but he made my day, he really was being sooo nice to me, making jokes. He even came back to show his friend, in a sneaky way, saying he forgot something (both are doctors). He said he will be back in 2 weeks to bother me again! haha!
Later in the day I had to do postings all around the main campus. At first I put on a pink hat that you can clearly see I have no hair on my head and did not match my striped zebra sweater. I heard my sister say in mind “what’s the point people can tell you're bald anyway.” I took the hat off put on my headphones and walked the campus with confidence.
People stared, but to be honest no one really cared. Unless they knew me from before. Even if that’s the case they never approached me to ask any questions. I am much bolder without hair!!!
Many of the women say they like my new look. Men were puzzled. Overall I got a lot of sympathy (I guess they thought I had cancer). One woman kept saying are you ok? How’s everything? Will you be ok? I responded I’m well thank you. And she left by shouting " and look at that beautiful woman over there" . I dont know how to respond to this! Even yesterday on my way to church on the train a group of runner, running for cancer stood over me, Im like just great! LOL
I am happy not because I was able to let go of the hair but I am happy that Jesus made away. Happiness comes from him and not things, not what we wear, what we eat, or what we drink. All those things will change (just like our hair). I have found out that God is still the same! He has never failed me. I thank God for his mercy and grace.
My acceptance started with him!!!
How do I respond to the sympathy (that makes me feel like I am dying) Maybe I can start saying I am well Thank God alopecia doesn't Kill? Whats your response?
I went to work without a wig, and guess what!!! I feel freeeee!!! I got the stares and the wows.
Even one guy who saw me last week with my wig asked, "What kind of treatment are you having?" I said "HUH? Oh I don't have cancer, I have alopecia" … he was very puzzled.
What else could I say but he made my day, he really was being sooo nice to me, making jokes. He even came back to show his friend, in a sneaky way, saying he forgot something (both are doctors). He said he will be back in 2 weeks to bother me again! haha!
Later in the day I had to do postings all around the main campus. At first I put on a pink hat that you can clearly see I have no hair on my head and did not match my striped zebra sweater. I heard my sister say in mind “what’s the point people can tell you're bald anyway.” I took the hat off put on my headphones and walked the campus with confidence.
People stared, but to be honest no one really cared. Unless they knew me from before. Even if that’s the case they never approached me to ask any questions. I am much bolder without hair!!!
Many of the women say they like my new look. Men were puzzled. Overall I got a lot of sympathy (I guess they thought I had cancer). One woman kept saying are you ok? How’s everything? Will you be ok? I responded I’m well thank you. And she left by shouting " and look at that beautiful woman over there" . I dont know how to respond to this! Even yesterday on my way to church on the train a group of runner, running for cancer stood over me, Im like just great! LOL
I am happy not because I was able to let go of the hair but I am happy that Jesus made away. Happiness comes from him and not things, not what we wear, what we eat, or what we drink. All those things will change (just like our hair). I have found out that God is still the same! He has never failed me. I thank God for his mercy and grace.
My acceptance started with him!!!
How do I respond to the sympathy (that makes me feel like I am dying) Maybe I can start saying I am well Thank God alopecia doesn't Kill? Whats your response?
Replies to This Discussion
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Permalink Reply by Mary on
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WAY TO GO!!!! I'm so happy for you. Isn't it amazing how much it doesn't matter, and how free you feel?! People still stare at me and ask me the cancer question all the time, but you know what? I DON'T CARE! This is who I am now, and I'm fine with it.
As to how to answer the cancer question - here's a recent blog I posted when I had an unusual (for me) negative response to it. The comments might be helpful to you. In general, I just smile and say something like "If I have to have an auto-immune disease, THIS is the one to have - I feel fine."
http://www.alopeciaworld.net/profiles/blogs/first-time-ive-lost-it-in
Congratulations,
Mary
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Permalink Reply by Garden Girl on
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AMEN!!!
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Permalink Reply by Sam Sam on
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Yes!!! This morning on my way walking to work I was hit on by 3 men who thought i was a bedroom freak (the devil is a liar) .... but it goes to tell you no body really cares just you. People see you as you see yourself, if you look nervous people will be nervous for you. With this bald head I walk with my head higher than i ever did before. It feels great!!! Okay Im bald, now what? LOL I LOVE IT!!!!!!!!! I mean i always have those doubts rising up in me. What if People stare me down, or talk about me.. I realized People dont really care, they look and keep moving, and in NYC its like a style now. SO i came out at the right time thank God.
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All we need is for more women to take this step. It really is a "Liberation Movement" all over again!
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Permalink Reply by Chefpam on
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WOW, this gives me chills! I am praying for this kind of deliverance! I used to ask God to let my hair stop falling out and now I just ask him to let this pass, whatever the end result is...not to keep me in this awful shedding place of fear and distress and worrying about morning styling and washing, etc. I just shared with another lady with hairloss the fact that we would never make fun of someone else for any reason, so why are we so scared that others will make fun of us? Oh how I want to break these walls that bind me! I am so thrilled for you!!
Regarding the sympathy thing I would probably just smile and say, "no I am actually living life more than ever, my hair just decided to go!"
I am dealing with debilitating health and the hair thing just compounds it! I am so exhausted. Pray for your sister in Christ that I arrive to that peaceful place that you have found! Hugs!
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@chefpam You know God doesn't plan for us to live life in a struggle. I know how hard the struggle is. I struggled with alopecia and the thought of telling somone would just make me want to run away from life. A conversation about hair I would walk way from and no longer be that persons friend. I thank God for the steps of deliverance. It was all baby steps. I was able to within in the last 4 years, tell someone I had alopecia. Then i was able to talk about it freely. Then I was able to tell people it.. even though then never seen it or I talked as if I was talking about someone else because it was not reality to me yet. Earlier, This year God really kept pushing me to go out bald one day, with the help of my sister I put on a hat and went outside. THIS WAS SOOO HARD FOR ME!!! It took me awhile to get the nerve to do what I said I would. I looked around me many times mad sure the cost was clear and took it off! ( I felt free and no one cared) >>> But i did not stop wearing wigs. I would wear scarfs on the weekend and during the week i was right back to bondage. (NOW THAT BECAME MY NEW STRUGGLE) LOL ... Again I took baby steps, i told my co-workers I had alopecia and showed them pictures. God allowed them to accept me for who I am. Before I did anything i prayed alot over and over almost like Jesus did " Lord take this cup from me" .... AND HE DIDN'T. I know my courage has inspired somone and giving them hopefully they will know They will live past this. Its funny I would never make fun of anyone might be curious but not to a point of hurting them. Your deliverance will come look for it, seek and you will find. Soon you won't stop telling people how you struggled and how God gave you the courage to be you (who else can be you? smiles) Thanks for your response. God Bless you in Jesus name!
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Yes Sam Sam, I agree. God wants us to find peace. I am really trying. I feel like Job sometimes though, one obstacle after another. It's like I am not sure which one to worry about. Then I tell myself what good does worrying do anyway, then I continue to do it! I avoid those hair talks at all cost! When I hear the word "HAIR" I feel my heart come up in my throat. When I look at a magazine I get ill. That's all you see!! I truly believe God did help you get to this point. We are only human and this stuff is tough! Sounds like you have a great support system. I am sure God will bless you in so many ways for just letting go and trusting Him. You have already become an inspiration and are paving the way for so many of us who are hurting. Keep me in your prayers. I keep reminded myself, "I can do all things through Christ!"...you are living proof of this. Big hugs to you!
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You will get to this point. I always like when Jesus says to those he healed, "your faith has healed you" and i like what he said to lazuras "this sickness is not unto death" You must keep on believing, You will live past this to pam! One day God is going to come by you and when you seek you will find just what he has for you.You will laugh about it. keep beleieving.
Ps. I am just grateful for the air that im breathing, I owe God all that I am, and just remember he never failed. Everytime i trusted him more the more he lets me know he is still there. It puts a smile on my face!
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Permalink Reply by Kathy De La Cerda on
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I hope that oneday my daughter will feel confident enough to go places with her wig she's only 8 and it hurts for some people in the neighborhood who have seen her bald stare and thinks she's sick too and look at me in sympathy but the only good I can think is atleast my baby doesn't have cancer and not to rude in anyway but my baby is still here and healthy and I glad you are so courageous!
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She is still very young, she may need to find whats comfortable to her and you just go with the flow. Not everday is a good day weather its with hair or bald (just with hair its easier to hide more or atleast feel like I am). Help her understand her beauty with or without hair. With alot of help she can be her and comfortable with or without a wig. I couldn't have done it with out my faith in God and sister who helped me change my look to fit the bald look.
The stares never go away (even with a wig, people were curious is that a wig? or why don't you ever where your hair?", but in week 2 of throwing the wig away, I am able to say.... I have forgot I am bald a few times...just by laughing and having fun.
I said to my sister yesterday, "why do people keep staring at you" LOL she laughed hard and replied, "I think they are staring at you" hahah I had no clue. Im like why would they be staring at me? OOOOOO im the bald girl.
Keep your daughter happy , help build her up ,and she will be full of joy. And I pray the smile on her face will fill you with joy too!
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